A study to learn more about people’s experiences of having treatment for myeloma (iPREFER)
Please note - this trial is no longer recruiting patients. We hope to add results when they are available.
Cancer type:
Status:
This study is looking at the experiences of people who have had several for myeloma. It is also looking to understand more about their treatment preferences.
The study is for people having care at The Christie NHS Foundation Trust in Manchester.
More about this trial
There are a number of different treatments for myeloma. In this study, researchers want to understand more about having these treatments and what matters most to patients.
To find this out, researchers plan to interview people and ask them about their treatment.
The main aims of the study are to find out about people’s:
- experiences of treatment
- treatment preferences
Please note, you might not benefit directly from taking part in this study. It might help improve treatment experiences for other people with myeloma in the future.
Who can enter
The following bullet points are a summary of the entry conditions for this study. Talk to your doctor or the study team if you are unsure about any of these. They will be able to advise you.
Who can take part
You may be able to join this study if all of the following apply. You:
- have myeloma
- have had 5 or more
courses of treatment for myeloma
- are at least 18 years old
- can understand English well
Trial design
The team need up to 15 people to take part in the study. The team will tell you about the study if they think you are suitable. If you decide to join, you take part in an interview. It takes about 30 minutes to an hour.
During the interview, a researcher will ask you questions about your experiences of treatment. They will also ask you which treatments you preferred and why. The interviews are either face to face or over the phone. This depends on which option suits you best.
The researcher audio records the interview.
It won’t be possible to identify you in any results from the study.
Hospital visits
You have an extra hospital visit if you have a face to face interview. The team might be able to arrange for you to have this on a day you are going to hospital for a routine appointment.
Side effects
The researchers don’t think you will have any extra side effects if you take part in this study.
You might be uncomfortable thinking or talking about your myeloma and your experience of treatment you have had so far. If there are any questions you do not want to answer, this is fine.
If you feel upset during the interview, the research team will be able to provide support or refer you to support services.
Recruitment start:
Recruitment end:
How to join a clinical trial
Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.
Chief Investigator
Dr Sally Taylor
Supported by
The Christie NHS Foundation Trust
CellCentric Limited
If you have questions about the trial please contact our cancer information nurses
Freephone 0808 800 4040