
"I am glad that taking part in a trial might help others on their own cancer journey.”
This study is looking at what it is like for people with a learning disability to get cancer screening.
In the UK people can have for:
Unfortunately not many people with a learning disability get cancer screening.
In this study researchers will ask 3 groups of people about cancer screening.
These groups are:
The aims of this study are to find out:
The following bullet points are a summary of the entry conditions for this study. Talk to your doctor or the study team if you are unsure about any of these. They will be able to advise you.
Who can take part
People with a mild to moderate learning disability
You may be able to join this study if all of the following apply. You are:
Carers of a person with a learning disability
You may be able to join this study if all of the following apply. You are:
Professional people
You may be able to join this study if any of the following apply. You:
Who can’t take part
People with a learning disability
You cannot join this study if any of these apply. You:
Carers of a person with a learning disability
You cannot join this study if any of these apply: You
Professional people
You cannot join this study if all of these apply. Your:
The team need the following to join the study:
People with a mild to moderate learning disability
A member of the research team interviews you. This can be either face-to-face or by video on a laptop or tablet. They do this at a time that is best for you.
You can have someone such as your carer or a member of the family with you at the interview.
The interview takes between an hour and 2 hours. You can ask them to come back on another day if this is too long for you.
The researcher will ask if they can tape record your answers. There might also be someone with the researcher who is writing things down. This is so they can be sure of what you say.
They will ask questions about yourself and what you think of screening for cancer.
The researcher will use Talking Mats to ask questions about screening for cancer. Talking Mats uses symbols, like pictures to help people talk to each other. The researcher will take a photo of the Talking Mat. This helps them remember what you said.
The researchers don’t think there will be any problem when you answer their questions. However, if you feel uncomfortable, upset or a bit tired you can ask to have a break any time you want.
The study team keep everything you say safe and private.
The team gives you a £30 voucher to say thank you for your time.
Carers of people with a severe or profound learning disability
A member of the research team interviews you. They arrange a time and place that is convenient for you. This can be either at your home, on the phone or a video call.
As much as possible they would like to involve the person you are caring for in the interview.
The interview takes between 30 minutes and an hour. The researcher will ask your permission to tape record the interview.
They ask questions about:
The team give you a £30 voucher to say thank you for your time.
Professional people
A member of the research team interviews you. They arrange a time and place that is convenient for you. This can be either on the phone or a video call.
The interview takes between 30 minutes and an hour. The researcher will ask your permission to tape record the interview.
They ask questions about:
There are no hospital visits in this study.
There is no treatment in this study so there are no side effects.
Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.
Professor Katie Robb
Dr Marie Kotzur
Cancer Research UK
University of Glasgow
University of Edinburgh
University of Dundee
Scottish Commission for Learning Disabilities
Promoting A More Inclusive Society
Enable Glasgow
BILD
Public Health Scotland
Scottish Government
NHS Scottish Learning Disabilities Nurse Leads Group
We have information about screening in the UK for:
Freephone 0808 800 4040
"I am glad that taking part in a trial might help others on their own cancer journey.”