"I was delighted to take part in a clinical trial as it has the potential to really help others in the future.”
A study looking at non Hodgkin lymphoma in people aged 15 to 29
This study is looking at the number of young adults diagnosed with non Hodgkin lymphoma, the treatment they have and how successful treatment is.
The study is open to young people who have been diagnosed between 2015 and the end of 2018.
More about this trial
Non Hodgkin lymphoma (NHL) in young adults is rare. Doctors do not have as much information about the disease and the best way to treat it as they do for other cancers.
By getting information for this group of people the researchers aim to
- find out the numbers of older teenagers and young adults diagnosed with different types of NHL
- discover what treatments are used for the different types and how successful the treatments are- they hope this will help to design clinical trials and decide what treatments should be used in future
- establish a resource of lymphoma tissue that can be used for research
The people whose information is used in this study will not have any direct benefit. But the information will be used to improve the treatment of NHL in young adults in the future.
Who can enter
The researchers want information on anyone
- aged between 15 to 29
- diagnosed with non Hodgkin lymphoma (NHL) between 2015 and the end of 2018
- being treated in England, Scotland or Wales
They will get this information about you from one of the following
- your treatment centre, from your specialist medical team and from the
pathologistwho diagnosed your NHL
- if you are in England details can also be sent by the Public Health England National Cancer Registration Service
The team want to include people who were diagnosed with NHL between 2015 and the end of 2018. Talk to your doctor if are interseted in joining this study,
Your doctor should give you a leaflet called ‘Research to improve cure for non Hodgkin lymphoma in young adults’. This outlines the reason why the researchers are doing this study. It explains how your doctor will send them details about
- your treatment
- how successful the treatment is
- how you are doing straight after treatment and up to 2 years after your diagnosis
The researchers ask your doctor for a sample (
The researchers hope the information from the study will be used to design better treatments for your specific type of NHL.
All your information is kept
If your details are sent to the researchers they will let you know how the study is going and what they have learnt by sending you a newsletter every year. They also send you a summary of their findings when the study has finished.
You do not have to agree to have your details passed to the study team if you don’t want to. Any details the study team have about you will be removed from their records if you don’t wish to take part.
There are no hospital visits associated with this study.
There are no side effects associated with this study.
How to join a clinical trial
Dr Robert Carr
Elimination of Leukaemia Fund
Experimental Cancer Medicine Centre (ECMC)
Guy’s and St Thomas’ Hospital Foundation Trust
NIHR Clinical Research Network: Cancer