A study looking at non Hodgkin lymphoma in people aged 15 to 29

Your doctor should give you a leaflet called ‘Research to improve cure for non Hodgkin lymphoma in young adults’. This outlines the reason why the researchers are doing this study. It explains how your doctor will send them details about

• your treatment
• how successful the treatment is
• how you are doing straight after treatment and up to 2 years after your diagnosis 

The researchers ask your doctor for a sample (biopsy ) of your lymphoma. This sample is used to understand more about NHL in young people. You do not have an extra sample taken for this study, the researchers will use one that has already been taken as part of your routine care. 

 

The researchers hope the information from the study will be used to design better treatments for your specific type of NHL. 

All your information is kept confidential and only the researchers involved in the study can access it. 

If your details are sent to the researchers they will let you know how the study is going and what they have learnt by sending you a newsletter every year. They also send you a summary of their findings when the study has finished. 

You do not have to agree to have your details passed to the study team if you don’t want to. Any details the study team have about you will be removed from their records if you don’t wish to take part.