A study about the experiences of people living with cancer and the care they receive about sexual health and wellbeing

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

All cancer types

Status:

Closed

Phase:

Other

This study is looking at the sexual health and wellbeing of cancer survivors and their intimate partners and the care they receive about it. 

It is open to:

  • people who had a cancer diagnosis within the past 10 years and or their partners
  • single people who had a cancer diagnosis within the past 10 years

More about this trial

A diagnosis of cancer can have a major effect on the person’s life and there partner’s. One aspect is how you and your partner feel about sex and sexuality.

A cancer diagnosis and treatment can affect your sex life and sexuality in many ways such as:

  • a physical change to the vagina or penis
  • tiredness and changes to how your body reacts
  • changes to how you feel about your body and sex
  • changes to the relationship with your partner

In this study the team ask you to fill in a survey online. This is to find out more about how cancer and its treatment have affected your sex life and sexuality. They also want to know about what information you might have got from the hospital about this. 

The aims of this study are to find out:

  • how a cancer diagnosis and treatment affect the sex life of people living with and beyond cancer
  • how it affects their intimate partners
  • what help hospitals and healthcare teams provide about sex and sexuality after a diagnosis of cancer and its treatment
  • how people feel about receiving care for their sex lives and sexuality from healthcare teams in hospitals

Who can enter

The following bullet points are a summary of the entry conditions for this study. 

Who can take part

You may be able to join this study if either of the following apply.

  • You had a diagnosis of cancer within the past 10 years. And you were at least 18 years when diagnosed.
  • You are a partner of someone who had a diagnosis of cancer within the past 10 years. And they were at least 18 years old when diagnosed. 

Who can’t take part

You cannot join this study if any of these apply.

  • Your treatment and follow up was not in the UK.
  • Your partner’s treatment and follow up was not in the UK. 
  • You have already done the survey. 

Trial design

This study is a survey. The team need 120 people living with cancer to join. And 120 partners of people living with cancer to join.

You fill in an online survey. The questions ask about:

  • what cancer you or your partner was diagnosed with
  • your sex life, sexual activity and wellbeing
  • what care you got from the hospital about sex and sexual health after a cancer diagnosis
  • your thoughts and feelings about talking about sexual issues with the healthcare team
  • your thoughts and feelings about how to improve the care provided about  sex and sexual health after a diagnosis of cancer and cancer treatment

The survey is anonymous and confidential. You cannot be identified by filling in the questions. And all your answers are kept in a safe place that only the study team can access. 

The survey takes about 15 to 30 minutes to complete. You can take longer if you wish. You can also take a break from doing the survey using the ‘finish later’ button. Then you can come back later to complete.

Hospital visits

There are no hospital visits.

Side effects

There are no side effects from taking part in the study. 

You might get upset thinking about your or your partner’s cancer and how it has affected your relationship.   

The study team have considered this when designing the survey to lessen the possibility. 

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Professor Sam Porter

Supported by

Bournemouth University
Fortuneswell Cancer Trust
NIHR ARC Wessex

Other information

You can find more information by clicking on the link from the research team about the survey.

Freephone 0808 800 4040

Last review date

CRUK internal database number:

18401

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Around 1 in 5 people take part in clinical trials

3 phases of trials

Around 1 in 5 people diagnosed with cancer in the UK take part in a clinical trial.

Last reviewed:

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