A study to see which quality of life questionnaire people with thyroid cancer find most helpful (DeteQT)

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Thyroid cancer

Status:

Closed

Phase:

Other

This study is looking at different quality of life questionnaires to see which one people with thyroid cancer prefer.

Treatments for thyroid cancer include surgery and radioactive iodine treatment. After surgery you may also take thyroid hormones.

Doctors try to assess what impact treatment has on peoples’ quality of life Open a glossary item . They usually do this by asking people to fill in questionnaires asking about how they are feeling, any side effects they have and how their illness or treatment is affecting their lives.

But there are different quality of life questionnaires in use. In this study, researchers want to find out

Which questionnaire people with thyroid cancer find most helpful
If it would be better to design a new questionnaire, taking the most useful parts from each of the others

The people taking part have the most common types of thyroid cancer called papillary thyroid cancer and follicular thyroid cancer.

Who can enter

You may be able to enter this study if you

Finished treatment for papillary or follicular thyroid cancer in the last 5 years and your doctors send you a letter asking you to join
Are at least 18 years old

You cannot enter this trial if you

Have medullary thyroid cancer, anaplastic thyroid cancer, or lymphoma of the thyroid
Cannot fully understand English
Have not had a confirmed diagnosis of thyroid cancer

Trial design

The people taking part will fill in 4 quality of life questionnaires. The study team will ask you to complete the questionnaires in a certain order. The order in which you fill them in is chosen at random by a computer.

After completing all 4, there is 1 more questionnaire which asks what you thought of them. This includes a number of questions asking whether you found the quality of life questionnaires useful. You can also make comments and suggest things you think are important that are not covered in the questionnaires.

Hospital visits

There are no extra hospital visits. It will take about half an hour to complete the questionnaires. The researchers will ask you to come to your next hospital appointment a bit early to do this. But if you want to, you can take the questionnaires home and return them by post in a stamped addressed envelope provided by the study team.

Side effects

There are no side effects from taking part in this study. The questionnaires include some questions of a personal nature, such as questions about sexual activity. If you don’t want to answer any of the questions, you don’t have to. All your answers are confidential Open a glossary item and will not affect your treatment in any way.