"We believed that with the clinical trial, Katie had the best chance of recovery. Without these trials, amazing new treatments may never be found."
A trial looking at treatment for haemophagocytic lymphohistiocytosis (HLH) in children and young people (HLH 2004)
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This trial looked at initial treatment for children and young people with haemophagocytic lymphohistiocytosis (HLH).
More about this trial
- primary HLH develops because of an inherited genetic change (mutation)
- secondary HLH develops because of a problem with the immune system such as an infection
Summary of results
- 168 had primary HLH
- 201 had secondary HLH
- just under 6 out of 10 people (59%) who had primary HLH
- more than 6 out of 10 people (64%) who had secondary HLH
- problems with the brain which may cause fits or learning difficulties
- problems caused by high blood pressure
- liver problems
How to join a clinical trial
Dr Vasanta Nanduri
Cancer Research UK Children's Cancer Trials Team
University of Birmingham
NIHR Clinical Research Network: Cancer