"I am glad that taking part in a trial might help others on their own cancer journey.”
A study looking at outcome measures in palliative care
This study looked at what people thought about using questionnaires to assess the needs and plan the treatment of people needing palliative care.
More about this trial
Outcome measures are a way of finding out what is important to patients and how they are doing. Issues in palliative care may include pain, loss of appetite, shortness of breath, constipation, anxiety or depression.
This pain scale is an example of an outcome measure that could be used to monitor pain. The scale uses numbers to assess how much the pain has affected people recently. It goes from 0 (not at all) to 4 (overwhelmingly).
- whether they would be willing to use outcome measures
- what difference they think using outcome measures could make
Summary of results
- 7 patients
- 4 family members
- 27 health care professionals
- a better understanding of specific needs or issues for individual patients
- better assessment and monitoring of care
- improved communication between patients, carers and health care professionals
- patients and their families feeling more involved in care, and finding it easier to feedback to the health care team
- an increase in pressure on the time of health care professionals
- some people may have issues that are not included in the questionnaires
- difficulty completing the questions when patients are very poorly
- no guarantee it would improve care
Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study.
Catherine Pinto, Fliss Murtagh and others
Annals of Palliative Medicine, volume 7, supplement 3, pages 137 - 150
How to join a clinical trial
Dr Fliss Murtagh
Guy's & St Thomas' Charity
King's College London
NIHR Clinical Research Network: Cancer