A study of the attitudes of trans men and non-binary people to screening for cervical cancer

Cancer type:

Cervical cancer

Status:

Open

Phase:

Other

This study is open to trans men and non-binary people who have a cervix or have had their cervix removed. 

A trans man is a person who was assigned female at birth but identifies and lives as a man.

A non-binary person is someone whose gender identity doesn’t sit comfortably with ‘man’ or ‘woman’. 

More about this trial

The cervix is part of the reproductive system. It is the neck of the womb at the top of the vagina. 

Cervical screening is a test (smear test) that checks the health of the cervix. The test looks for any changes (abnormalities) of the cells of the cervix. 

The aim of cervical screening is to reduce the number of people who develop cervical cancer. An abnormal test means that the person can either have further tests or a doctor might remove the abnormal cells.

Anyone with a cervix between the ages of 25 and 64 years old can have cervical screening. But only people who are registered as female with their GP automatically receive an invite for screening. 

In this study the researchers want to find out about the views and experiences of trans men and non-binary people about cervical screening. And what factors might stop someone from having cervical screening.

They hope that a better understanding of these people’s views and experiences can make cervical screening easier and more available to them in future. This might include making changes to the NHS’s policies on screening. 

Please note you will not get direct benefit from taking part in this study. 

 

Who can enter

The following bullet points list the entry conditions for this study. Talk to your doctor or the study team if you are unsure about any of these. They will be able to advise you. 
 
Who can take part
 
You may be able to join this study if all of the following apply. You are going to 56 Dean Street or the Gender Identity Clinic, London and are:
  • a trans man or non-binary person who was assigned female at birth
  • a resident in Wales, Northern Ireland, Scotland or England 
  • 18 to 80 years old 
Who can’t take part
 
You cannot join this study if any of these apply. You are:
  • in prison
  • not able to make decisions about how the information you give is used 

Trial design

The study team need about 1,400 trans men and non-binary people to join the study. 
 
You might be asked to take part if you have gone to the Gender Identity Clinic or through CliniQ.
 
You will receive an email inviting you to take part. The email includes:
  • a letter of invitation to the study
  • a link to an online questionnaire
  • an information sheet  
To join the study, you click on the link to the online questionnaire. This contains:
  • an information sheet 
  • the questionnaire
You tick a box to show that you have read the information sheet and agree to take part in the study. You then answer the questionnaire. 
 
The first questions are to confirm that you are suitable to take part in the study. If you are suitable you are asked to fill in the rest of the online questionnaire. 
 
You have 1 month to fill in the questionnaire. 
 
You might receive a reminder. Don’t fill in the questionnaire again if you have already completed it. 
 
The questions are about:
  • yourself and where you live 
  • any cervical screening you have had
  • the health of your reproductive system Open a glossary item such as procedures involving your womb and cervix 
  • your sexual health history
  • your attitudes about and experience of cervical screening 
The questionnaire is confidential. You will not be able to be identified by any information or answers that you give. 
 
At any time during the questionnaire you can decide to withdraw your consent and not continue. If you decide you don’t want to continue, don’t submit the questionnaire. 

Hospital visits

There are no hospital visits if you agree to take part in this study.

Side effects

Some of the questions might cause distress and upset you. The study team include contact details and information of organisations that you can contact. 

Location

London

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Dr Alison Berner

Supported by

Jo's Cervical Cancer Trust
Gender Identity Clinic
LGBT Foundation
CliniQ

 

Questions about cancer? Contact our information nurses

Freephone 0808 800 4040

Last review date

CRUK internal database number:

15961

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Charlie took part in a trial to try new treatments

A picture of Charlie

“I think it’s really important that people keep signing up to these type of trials to push research forward.”

Last reviewed:

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