A study looking at thoughts and feelings around fertility issues in young women with breast cancer

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Breast cancer





This study is looking at attitudes and beliefs of health professionals, and young women with breast cancer about being able to have children (fertility) after breast cancer.

As more young women survive breast cancer, issues such as fertility after breast cancer treatment become more important. We know from research that women often do not have enough information about their choices in this area. An earlier study showed that surviving cancer was a top concern. But there were also many concerns about how fertility decisions affect survival. Some women felt that different health care professionals had given them different advice, which they found confusing. The study team would like to look at these concerns in more detail in a new, larger study.

They will use a questionnaire to gather information from young women with early breast cancer, and from health professionals who care for people with breast cancer. The aim of this study is to find out more about the beliefs and attitudes of health professionals and patients about fertility issues in young women with breast cancer.

Who can enter

You can enter this study if you

  • Are a woman with cancer that has not spread beyond the breast or the armpit lymph nodes Open a glossary item on the same side as the affected breast (early stage breast cancer)
  • Were under the age of 40 when you were diagnosed
  • Can read English easily

You cannot enter this study if your breast cancer has spread to another part of your body (stage 4 breast cancer).

The study will also recruit health care professionals who care for women with breast cancer, including surgeons, breast care nurses and cancer specialists (oncologists).

Trial design

This study will recruit at least 550 people. This will be at least 400 women with breast cancer, and 150 health care professionals. You don't have to go through your doctor to join this trial, and women from all over the country are able to take part.

Everyone will fill out one of 2 questionnaires, depending on whether they have breast cancer, or are health professionals. The questions will aim to find out about your beliefs and attitudes about fertility in young women with breast cancer. It will take about 45 minutes to complete. You then return the questionnaire to the study team in the pre paid envelope.

Hospital visits

You will complete and return the questionnaire by post. So you will not have to visit the hospital to take part in this study.

Side effects

As there are no treatments in this study, there are no side effects. But you may find it difficult to think about some of the areas the questionnaire will cover. If you feel you may find it hard to cope with, you may decide to not take part. This would not affect the care you receive from your specialist team. If you want to talk about any issues raised in this questionnaire, your doctor or breast care nurse will be able to support you.

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Dr Anne Armstrong

Supported by

NIHR Clinical Research Network: Cancer
The Cancer Experiences Collaborative
The Christie NHS Foundation Trust

Freephone 0808 800 4040

Last review date

CRUK internal database number:

Oracle 6289

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Harriet wanted to try new treatments

Picture of Harriet

“I was keen to go on a clinical trial. I wanted to try new cancer treatments and hopefully help future generations.”

Last reviewed:

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