A study looking at differences in cancer survival between patients in similar countries (ICBP module 4)

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Bowel (colorectal) cancer

Breast cancer

Lung cancer

Ovarian cancer

Status:

Closed

Phase:

Other

This study is a survey looking for differences in the time taken to diagnose people with cancer in different countries. This study is supported by Cancer Research UK.

The International Cancer Benchmarking Partnership (ICBP) is a partnership between Australia, Canada, Denmark, England, Northern Ireland, Norway, Sweden and Wales. The aim of the partnership is to compare cancer survival rates across the countries and investigate differences.

They have found differences in survival in patients with lung, breast, bowel and ovarian cancer in the various ICBP countries. This study is seeing if this is due to differences in the time it takes to diagnose Open a glossary item and treat cancer. The researchers hope to compare information collected from everyone recently diagnosed with these cancers in the countries taking part.

They hope it will help them understand any delays that you may have had. This will help the NHS improve the way they look after people with cancer.

Who can enter

If you are diagnosed with cancer, your details are sent to the NHS Cancer Registration System. This system will contact your GP, asking them to forward the study details from the study team to you. If your GP agrees, they will do this. People taking part will have been diagnosed in the last 6 months with a cancer that started in either the

Breast
Ovary or fallopian tube
Lung or the tube taking air into your lungs (the bronchus - not including your wind pipe)
Large bowel (colon) or back passage (rectum)

And

Would be able to complete the questionnaire within 6 months of being diagnosed
Are at least 18 years old

You cannot enter this study if

Your cancer is at a very early stage and has not spread into surrounding tissues (doctors say your cancer is ‘in situ ’)
You have had a separate cancer in the same organ before
You are a male with breast cancer
You have more than one primary cancer

Trial design

This study will recruit at least 50 people for the pilot study and 200 people for the main study for each cancer type in each country taking part.

Everyone taking part will fill out a questionnaire asking about

Symptoms you had before you were diagnosed
How long it took for you to be diagnosed and treated
Tests you had

The questionnaire should take about 20 minutes. The researchers will also ask for permission to contact your GP and hospital for more information about your diagnosis and treatment.

They may contact you if anything from your questionnaire is not clear. Or, to ask you to fill out the questionnaire again (if you are taking part in the pilot study). This is to help them test the quality of the questionnaire.

Hospital visits

You will not need any extra hospital visits to take part in this study.

Side effects

You should not have any side effects as a result of taking part in this study. But thinking about your experience of cancer may be upsetting. The researchers have carefully designed and tested the questions to try to make sure that this does not happen.

Recruitment start:

12/10/2012

Recruitment end:

30/06/2014

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

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Questions to ask your doctor about clinical trials

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Prof Usha Menon

Supported by

Cancer Research UK
Department of Health
International Cancer Benchmarking Partnership (ICBP)
NIHR Clinical Research Network: Cancer
The Eve Appeal
University College London (UCL)

Freephone 0808 800 4040

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