A study looking at the needs of young people who have cancer for which cure is unlikely (BRIGHTLIGHT companion study)

This study is looking at the needs of people between 16 and 40 who have cancer for which a cure isn’t likely. It is related to another study looking at the care of teenagers and young adults with cancer called BRIGHTLIGHT.

The impact of incurable cancer on patients and their families is strongly influenced by age. But for adults in early to mid life, very little is known about their end of life experience or how care is best delivered.

In this study, the researchers want to find out what the most important parts of care are for young people with cancer when cure is not likely. They want to see whether there are differences between the experiences of people aged 16 to 24 and those aged 25 to 40. They also want to find out how young people and their families can be supported, and to identify the challenges that exist for health and social care professionals providing care.

You will not have any direct benefit from taking part in this study as your treatment and care will not be affected. But the information collected will help with how services are organised in the future.