“I think it’s really important that people keep signing up to these type of trials to push research forward.”
A study looking at the information and support needs of people with follicular lymphoma
We know that this is an especially worrying time for people with cancer and their family and friends. We have separate information about coronavirus and cancer. Please read that information alongside this page. We will update that information as guidance changes.
Please note - this trial is no longer recruiting patients. We hope to add results when they are available.
This is a study to understand what kind of information and support people need if they are diagnosed with follicular lymphoma but don’t need to have treatment straight away.
If you are diagnosed with follicular lymphoma but don’t have symptoms, your doctor may decide just to keep a close eye on you rather than starting treatment immediately. You may hear this called watch and wait.
The aim of this study is to understand more about the support and information that people in this situation need.
You won’t get any direct benefit from taking part, but the information collected may help to develop ways of helping people to cope with having follicular lymphoma but not needing treatment immediately.
Who can enter
You cannot volunteer to join this study. You may be asked to take part if you are being treated in Aberdeen and you
- Have been diagnosed with follicular lymphoma but are not starting treatment straight away (the watch and wait strategy)
- Are at least 18 years old
- Can read and speak English fluently
You cannot enter this study if you
- Are having any sort of treatment for follicular lymphoma
- Have had any other type of cancer
If you agree to take part, you have an interview with a researcher. This will take place at a time that suits you. They will ask you about the sort of information and support you think you need. They will make an audio recording of the interview.
The interview will be a time that is convenient for you. You can have the interview at Aberdeen Royal Infirmary, or in your own home.
You may find it upsetting to talk about your experience of being diagnosed with follicular lymphoma. If you feel distressed, the interview will be stopped. With your permission, the researcher will contact your specialist team who can provide further support.
How to join a clinical trial
Edinburgh Napier University
Macmillan Cancer Support
NIHR Clinical Research Network: Cancer