A study looking at the information and support needs of people with follicular lymphoma

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Blood cancers

Low grade lymphoma

Lymphoma

Non-Hodgkin lymphoma

Status:

Closed

Phase:

Other

This is a study to understand what kind of information and support people need if they are diagnosed with follicular lymphoma but don’t need to have treatment straight away.

If you are diagnosed with follicular lymphoma but don’t have symptoms, your doctor may decide just to keep a close eye on you rather than starting treatment immediately. You may hear this called watch and wait.

The aim of this study is to understand more about the support and information that people in this situation need.

You won’t get any direct benefit from taking part, but the information collected may help to develop ways of helping people to cope with having follicular lymphoma but not needing treatment immediately.

Who can enter

You cannot volunteer to join this study. You may be asked to take part if you are being treated in Aberdeen and you

Have been diagnosed with follicular lymphoma but are not starting treatment straight away (the watch and wait strategy)
Are at least 18 years old
Can read and speak English fluently

You cannot enter this study if you

Are having any sort of treatment for follicular lymphoma
Have had any other type of cancer

Trial design

If you agree to take part, you have an interview with a researcher. This will take place at a time that suits you. They will ask you about the sort of information and support you think you need. They will make an audio recording of the interview.

Hospital visits

The interview will be a time that is convenient for you. You can have the interview at Aberdeen Royal Infirmary, or in your own home.

Side effects

You may find it upsetting to talk about your experience of being diagnosed with follicular lymphoma. If you feel distressed, the interview will be stopped. With your permission, the researcher will contact your specialist team who can provide further support.