A study looking at how teenagers and young adults are diagnosed with cancer

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Blood cancers
Bone cancer
Brain (and spinal cord) tumours
Children's cancers
Ovarian cancer
Soft tissue sarcoma
Testicular cancer





This study is to learn more about how teenagers and young adults are diagnosed with cancer. The study is for teenagers and young adults who have been diagnosed with one of the following cancers

More about this trial

This study is recruiting teenagers and young adults between 13 and 29 years old. We use the term ‘you’ in the summary, but of course if you are a parent, we are referring to your child.

Because cancer is more unusual in this age group, researchers are interested to see how long it takes to find the cancer and how doctors go about making the diagnosis.

In this study, they will ask you to fill in a questionnaire and ask permission to look at your medical notes.

The aim of the study is to identify possible delays in diagnosing cancer in teenagers and young adults. Finding any delays and the cause of delays will help to improve the way we look after teenagers and young adults with cancer in the future.

Who can enter

You may be able to join the study if you are between 13 and 29 years old and you have one of the following

You must have also been diagnosed for no more than 2 months.

Trial design

The researchers need 300 to 400 teenagers and young adults to join this study.

You fill in a questionnaire asking about

  • The symptoms you may have had before being diagnosed
  • How long it took for your cancer to be diagnosed and for you to start treatment
  • Any tests you had

The researchers will also ask if they can contact your GP and hospital doctors for further information about your cancer and its treatment.

Hospital visits

There are no extra hospital visits if you take part. The questionnaire will take about 20 minutes to do. You do this online. The team will send you the details of how to log in by post, email or will hand them to you at one of your hospital appointments.

Side effects

The questionnaire will ask you about the time leading up to when you were diagnosed. You may get upset thinking about this. If you do, you can talk to one of the study team or a member of your medical team.

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Dr Daniel Stark

Supported by

European Commission
Leeds Teaching Hospitals NHS Trust
NIHR Clinical Research Network: Cancer
University of Leeds

Freephone 0808 800 4040

Last review date

CRUK internal database number:

Oracle 12871

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Cara took part in a clinical trial

A picture of Cara

"I am glad that taking part in a trial might help others on their own cancer journey.”

Last reviewed:

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