A study of how women receive information and make a decision about their menopause care after having breast cancer

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Breast cancer

Status:

Closed

Phase:

Other

This study is looking at the information women receive about menopausal care after breast cancer. And whether they are actively included in making decisions about their treatment.

You can join if you were born a woman (a cis woman) and have had one of the following:

More about this trial

Breast cancer treatment can cause an early menopause Open a glossary item for women who aren’t already in menopause (pre menopause). For women who are already in menopause cancer treatment can cause the symptoms to be worse.

Hormone replacement therapy (HRT) is an effective treatment for menopause symptoms. It also has long term health benefits such as reducing the risk of bone thinning (osteoporosis) and heart disease.

But HRT is not routinely offered to women after breast cancer treatment. This is because there is a small risk that it could cause the cancer to come back.

HRT is not the only treatment for menopause symptoms. Women with a history of breast cancer have lots of menopause treatment options. Unfortunately, many women struggle to access help for menopause symptoms after breast cancer. This is for a variety of reasons, which means that many women suffer unnecessarily.

In this study you fill in a survey online about menopause care after having breast cancer.

The aims of the study are to:

understand more about women’s experience of menopause care after breast cancer
find out whether they are receiving information about all the treatment choices
find out whether they feel they are actively included in making decisions about their treatment
explore women’s attitudes to using HRT after having breast cancer

Who can enter

The following bullet points are a summary of the entry conditions for this study. Talk to your doctor or the study team if you are unsure about any of these. They will be able to advise you.

Who can take part

You may be able to join this study if all of the following apply. You:

were born a woman (cis woman)
have had breast cancer, DCIS or LCIS
were treated in the UK
can speak English
have access to a suitable device such as a laptop or phone
are at least 18 years old

Who can’t take part

You cannot join this study if you are male or a trans woman.

Trial design

This is an online survey. You are invited to click on a link to the survey.

The team expect between 500 and 2,000 women to take part.

You fill in a questionnaire online. The questions ask about:

personal details such as your date of birth
whether you have gone through menopause and if so whether you have any symptoms
if you have any health concerns
whether you took part in the decisions about your health and treatment
any treatment you have or had for menopause and about HRT

The questionnaire takes about 20 minutes to do. All responses are anonymous and confidential Open a glossary item .

Hospital visits

There are no hospital visits if you take part in the study.

Side effects

There are no side effects from taking part.

You might become upset when answering questions about breast cancer and your treatment. You can contact someone in the study team if this of concern for you.