
"We believed that with the clinical trial, Katie had the best chance of recovery. Without these trials, amazing new treatments may never be found."
This study is collecting samples from children and young people with a lymphoma or a solid tumour. In this study, a solid tumour is any type of cancer other than leukaemia. This tissue bank is supported by Cancer Research UK.
Please note, we use the term ‘you’ in this summary, but of course if you are a parent of a child with cancer, we are referring to your child.
A lot of research into understanding and treating cancer uses cancer cells as well as normal tissue such as blood and . To help this type of research, an organisation called the Children’s Cancer and Leukaemia Group (CCLG) has set up a tissue samples store called a tissue bank, which is based in Newcastle.
If a researcher wants to look into a particular cancer or treatment, they can ask for permission from a committee, such as an , to use samples from this tissue bank. They can also look at medical information about the sample, such as the type of cancer, the treatment the person had and how they got on.
The CCLG is asking permission to take samples of tissue left over from or removed during surgery. They will get this from children and young people with a solid tumour or
. Or, from people over 16 who have a type of solid tumour usually only found in children. They will also ask permission to collect blood samples and to get information from your medical notes.
The aim of the study is to help researchers understand more about cancer and its treatment. You will not get any direct benefit from giving to this tissue bank, but the samples will be used to help people in the future.
You may be able to take part in this study if you:
If you lose a child to a solid tumour, or lose someone over 16 to a type of solid tumour usually found in children, the hospital might carry out a special examination after the person has died. This is called a post mortem. If this happens, the CCLG may also ask if you would be willing to let them collect tissue from your loved one during this examination, for this tissue bank.
You cannot enter this study if you have HIV, hepatitis B or any other infection that might be a risk to those collecting or using the tissue – you can ask the team about this.
If you have any tissue removed during tests to find out what is wrong, or as part of your treatment, the CCLG will collect a small sample of this to store in their tissue bank. The sample they take will be about the size of a grape.
If you are having a routine blood test, they may ask if they can take about a teaspoonful of blood at the same time, to store at the tissue bank. will be separated from the blood samples and stored for research purposes. This may include genetic testing.
The CCLG will also collect information from your medical notes about your diagnosis, treatment and how you are getting on.
They will treat all this information anonymously, so no one will be able to link it to you.
You should not have to make any extra hospital visits if you take part.
As there are no treatments as part of this study, there are no side effects.
Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.
Dr Christopher Bacon
Cancer Research UK
Children's Cancer and Leukaemia Group (CCLG)
Newcastle University
Paediatric ECMC Network
If you have questions about the trial please contact our cancer information nurses
Freephone 0808 800 4040
"We believed that with the clinical trial, Katie had the best chance of recovery. Without these trials, amazing new treatments may never be found."