Patient representative with experience of paediatric cancers
We’re looking for a patient representative with paediatric cancer experience (patient OR family/parent/loved one) to support our work to develop a new platform to bring together data sets on paediatric patients who have relapsed.
Summary
Type of activity: Patient Representative
Organised by: Cancer Research UK
Location: Online, anywhere
Time commitment: 4-year role with regular meetings
Payment and Expenses: We offer £30 for 2 hours, £50 for 4 hours, £80 for full day of involvement activity. This includes meetings and any preparation time. In addition, we offer a £5 allowance for online meetings.
Looking for: People with experience of paediatric cancers (patient OR family/parent/loved one). We would particularly welcome applications from young people or those who had cancer as a child/teenager/young adult
Closing date: Monday 16 September
If we receive enough responses for this opportunity, we may close early.
Opportunity information
The Experimental Cancer Medicine Centre (ECMC) Paediatric Network are developing a new platform to bring together data sets on paediatric patients who have relapsed. Our work aims to improve the clinical trials landscape for children and young people and increase access to new medicines.
We’re looking for a patient representative with paediatric cancer experience to support our work! We’d particularly welcome applications from young people or those who had cancer as a child/teenager/young adult.
In this role, you’ll work with one other patient representative and a range of stakeholders. As we develop this new database, You’ll help us ensure that the voices and priorities of people affected by pediatric cancer are represented in all that we do.
The role
We’re looking for someone who:
-
Is or has been diagnosed with cancer when under the age of 25 OR has a close family member/friend who was under the age of 25 when diagnosed
-
Has an interest in data and technology. It will help you understand the topics to be discussed, while also contributing your perspective as a patient/family/friend.
You do not need to have:
-
Any knowledge of Cancer Research UK, Experimental Cancer Medicine Centre (ECMC), or the work we do
-
An understanding of research or biology.
In this role, you'll:
-
Work closely with the ECMC Paediatric network
-
Attend and actively contribute to a maximum of 2 virtual meetings per month.
What you’ll get out of it:
-
Work closely with some of the leading clinicians in children’s and young people’s cancers in the UK and learn more about the work we do in the ECMC Paediatric Network
-
Have a chance to input into important decisions that will influence children’s and young people’s cancer treatment and care in future
-
Learn more about patient data and how this can be used to uncover more insights into children's and young people’s cancers.
How to apply
Please read the role profile to see if it's right for you. If you'd like to apply please fill in the short online application form by Monday 16 September.
Role Profile
If shortlisted, you may be invited to an informal online/phone interview with Lindsey Millward (Paediatric Translational Research Manager in the ECMC team). The interview will help us decide who to take on board.
If you have any questions about this opportunity, please email lindsey.millward@cancer.org.uk or call 020 3469 5821.
Equality, Diversity and Inclusion
At Cancer Research UK we value diversity and we're committed to creating an inclusive space where everyone can be themselves and help shape our work. We actively encourage applications from people of all backgrounds, communities and cultures and believe that a range of views and experiences will help us represent all people affected by cancer.