Patient involvement opportunities

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Join our network and we’ll send you our fortnightly newsletter which lists all the latest opportunities to get involved. we are looking forward to working with you.

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Here's our latest involvement activities you can take part in 

Working with you gives us invaluable insights that can help develop our work, accelerate our progress and save lives. Whether you've got lots of time to spare or only a little, and whatever your experience of cancer, we hope you'll find an activity that interests you. We regularly update this page, so please come again to visit soon.

You'll need to be aged 18+ to take part in most of our opportunities. Any opportunities available for aged 16+ will be highlighted on the information page.

Test our new clinical trial app!

man on laptop

We’re looking for 10 people to help test a prototype of a new app that will support patients on clinical trials. Your feedback from testing this app will help to shape the final version.

Survey - Review questionnaire about understanding life after cancer treatment

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Imperial College London has created a questionnaire to help patients explain their quality-of-life following treatment for cancer. By reviewing this questionnaire, you can help make sure the questions asked are helpful and meaningful to patients.

Shape research to help people to attend lung cancer screening

woman on phone

Help improve participation in lung cancer screening by sharing your views on a new study exploring why people don’t take part, and how they can be supported to do so.

Survey - What should clinicians consider when searching for a clinical trial?

patient talking to a clinician

Help us to understand the process of clinical trial matching from a patient’s perspective and the key criteria that you wish to be taken into account by your clinician/nurse.

Survey – Help us design a new clinical trial for patients receiving CAR-T therapy

woman on laptop

We want to hear from people who have experience of stem cell transplant or CAR-T therapy (patients, carers, loved ones) to make sure a new clinical trial is as appropriate and patient-centred as possible.

Patient and Public Involvement (PPI) Representative for the REFINE Trial

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Medical Research Council (MRC) Clinical Trials Unit at UCL are looking for someone affected by advanced kidney cancer (patient or loved one) to join the Trial Management Group (TMG) of the REFINE trial. This trial aims to find out the best schedule of giving immunotherapy to patients with advanced cancer.

The Alleviate Pain Data Hub, a new online engagement & involvement community

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The Alleviate project is creating a data hub for pain research. They’re looking for people in the UK living with any type of pain, or a carer of someone with pain, and who are interested to learn more about the project to join their online patient community.


As a result of the COVID-19 (coronavirus) pandemic, we are currently holding all of our patient involvement activity online (mostly though Microsoft Teams). Although advice from the Government on measures such as isolating, social distancing and wearing a mask have changed, we want to ensure that our patient involvement actives are carried out in a way that feels safe and comfortable for people affected by cancer.

If you or a loved one has cancer, you might feel especially worried. The NHS and the Government continue to share guidance which we have summarised and linked to from our information pages and you can speak to our nurses on 0808-800-4040 if you want to talk any of this through.

Get in touch

If you have questions about any of our opportunities, or feedback for us, you can contact us by emailing us at or call us on 0203 469 8777.  We're always happy to answer questions and receive feedback, so please don't hesitate to get in touch.