Patient involvement opportunities
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Join our network and we’ll send you our fortnightly newsletter which lists all the latest opportunities to get involved. we are looking forward to working with you.
Working with you gives us invaluable insights that can help develop our work, accelerate our progress and save lives. Whether you've got lots of time to spare or only a little, and whatever your experience of cancer, we hope you'll find an activity that interests you. We regularly update this page, so please come again to visit soon.
The latest involvement activities you can take part in
You'll need to be aged 18+ to take part in most of our opportunities. Any opportunities available for aged 16+ will be highlighted on the information page.
Join our Inclusion in Involvement Steering Group
We’re looking for people affected by cancer to join our new steering group to give a voice to those who may feel unheard or previously felt they couldn't share their views on cancer information, research, and campaigning. This group will help us understand how to better include ALL cancer experiences in our work. This is a chance to get your voice heard and to change the future of cancer representation.
Informal interview - Your opinion on our ‘In Memory’ products
Take part in an informal interview to share your experience of remembering and celebrating the life of a loved one to help us improve our ‘In Memory’ product range.
Content reviewer – Help make our health and patient information the best it can be
To make sure the information we provide is useful for those who need it, we're looking for people to review and provide feedback on our web pages and leaflets about cancer
Focus group - Help define what we need from the next UK Government
At the end of 2023 we’re publishing a report on clear actions for the government to take which would lead to significant improvements for people affected by cancer. Join our focus group and share your views on the changes needed to prevent cancer.
Patient Representative - Shape the future regulatory space for mRNA cancer vaccines
The UK regulator for medicinal products (MHRA) is seeking patients affected by cancer to participate in an Expert Working Group on the regulation of cancer vaccines. The lived experience provided by cancer patient representatives will be valuable to the scientific information considered by the Group.
Informal interview - Criteria used to decide who is offered lung cancer screening
Share your views about the different criteria used to decide who is offered lung cancer screening to help researchers develop a charity-funded research project in lung cancer screening.
Standards for patient and public involvement in data-driven research
The Public Engagement in Data Research Initiative (PEDRI) want your feedback on their new standards for public involvement and engagement in data-driven research and statistics.
Have you had an antibiotic resistant infection?
Researchers at UCL are looking for people living with cancer who have a personal experience of an antibiotic-resistant infection to share this through a 'digital story'. This is part of a research project trying to improve public awareness of antibiotic resistance and how people with cancer are often impacted.
Focus Group for CRUK Grand Challenge application
Researchers at the Barts Cancer Institute would like people affected by cancer from ethnic minority backgrounds, particularly breast, prostate and pancreatic cancers to share their experience, ideas and opinions to shape their Grand Challenge project proposal on tackling Cancer Inequities in many of the common cancer types.
Workshop - Help develop cancer diagnostic tests that respond to unmet needs
Take part in a workshop to share your experience of the cancer diagnosis processes in the NHS. The insights will be used to develop a tool that can help efforts to ensure that innovative cancer diagnostic tests respond to unmet needs.
Survey - App that aims to help people navigate their cancer journey
Take this short survey to help app developers understand the needs and preferences of people affected by cancer to inform the development of a new app that will help navigate a cancer journey.
Interview and/or survey - Questionnaires that measure cancer treatment satisfaction and symptoms
Health Psychology Research are looking for volunteers to help develop two new questionnaires for people with cancer. The questionnaires will help health professionals identify the most promising new treatments for cancer and make the best use of existing treatments in routine care.
Telephone interview - A mobile phone application for lung cancer
Help researchers understand patient experience with a mobile phone application for lung cancer. This will be a short and informal telephone conversation to help share your thoughts and shape the research design.
Survey - What support networks are available to breast cancer patients?
Researchers from the London School of Hygiene & Tropical Medicine (LSHTM) would like to hear your thoughts on the organisations or support networks you engaged with throughout your breast cancer journey. Take this short 10-minute survey and share what support you received around the time of diagnosis through to treatment and survivorship. This opens to an external page.
Survey - Help improve the consistency of external breast prostheses
Help researchers understand the perception of and opinion of external breast prostheses from the perspective of women after mastectomy to inform design decisions towards which innovation in 3D printing will be conducted. (This opens to an external page)
Survey - Taste perception in cancer patients
Help researchers at Reading University understand how cancer patients' dietary preferences vary. This will provide practical recommendations to help patients and their families enjoy eating.
Get in touch
If you have questions about any of our opportunities, or feedback for us, you can contact us by emailing us at
firstname.lastname@example.org or call us on 0203 469 8777. We're always happy to answer questions and receive feedback, so please don't hesitate to get in touch.