Involvement news and stories
Co-developing Life Beyond Cancer
People affected by cancer co-developed Life Beyond Cancer. This is a new dedicated webpage which hosts information and support specifically for patients who are post cancer treatment and loved ones supporting a family member during this time.
Junior Investigator Network Group. Training the next generation
8 patient representatives from the Involvement Network attended this year's annual JING conference to share their experience of cancer and patient involvement in research.
Involving people affected by cancer in shaping our genomics policy work
The Cancer Research UK Policy Development team have been working on a policy statement to inform government and health leaders about the use of genomics in cancer care now and in the future. At the early stages of this project you were consulted to gather a picture of what you understand about genomics and share your experience.
Helping us to understand the role of carers
The Health Information team wanted to gather the experiences of unpaid carers and the barriers they face. You helped them to understand the role of unpaid carers in helping those they look after to access and understand health information about cancer.
Annual Involvement Members Social Event
In October, we hosted our annual Cancer Insights Panel Hybrid Social. This event was to recognise member contributions, provide an opportunity to connect with other members and learn more about cancer research.
Shaping the Annual Supporter Update 2024
In September, we launched this year’s Annual Supporter Update (ASU), which highlights our research achievements from the past financial year and demonstrates the progress we’ve made. Prior to publication, you were invited to share your feedback on this year’s report via a survey.
Meet Caroline
"What stood out to me most was that he didn’t want others to go through what he went through. That’s why I feel so strongly that lived experience must influence how we work - because Fraser saw the gaps, and in his short time, he tried to fix them, even while fighting for his own life."
Meet Faaria
"As a member of a minority community, I know that sometimes we’re not heard. It’s important to speak on behalf of those that are not able to do for themselves, for whatever reason."
Meet Nic
"Young people affected by cancer face unique challenges, that demand more attention and support. A wide range of issues arise - from delays in diagnosis and difficulties accessing age-appropriate treatment to a lack of meaningful help for the significant emotional and social impacts cancer has during such a formative stage of life."
Meet Bettina
"I’ve seen change recently, particularly in Equality, Diversity, and Inclusion, where Cancer Research UK is putting people like me at the heart of how it works. It’s an amazing organisation, however, without the voice and experiences of ALL people affected by cancer, the whole story isn’t told."
Meet Andrew
"The patient involvement team makes the process of being involved with the group easy. You feel that you’re making a real difference. We’re a diverse group in age, backgrounds, and of course cancer journeys."