Kes, from patient to presenter

Kes’s connection with Cancer Research UK began through a deeply personal journey. Diagnosed with a rare blood cancer, myelodysplastic syndrome, in 2000, Kes spent 16 years balancing full-time work with the unpredictable challenges of illness - including 16 episodes of neutropenic sepsis and a life-threatening bout of septic shock. In 2016, a stem cell transplant offered a new chapter, though not without complications. “My sister was my donor, which probably explains the graft versus host disease - we used to squabble as kids. Lol.”

Kes’s spirit remains unshaken. Friend and fellow Involvement Network member Ally Boyle encouraged Kes to get involved with Cancer Research UK, and since then, Kes has contributed to various projects, driven by a passion for equality and survivor wellbeing. “More and more people are surviving cancer, but at what cost? Quality of life matters. Cancer Research UK’s commitment to this aligns with everything I care about.”

This year, Kes joined the judging panel for the Our Heroes Annual Awards and presented at the ceremony. Reviewing the nominations was mind-blowing. There were so many impressive individuals and teams, and the judging day offered a deeper insight into the organisation’s work. The event was expertly coordinated, and the thoughtful questions from fellow panelists made the experience even more meaningful.

"The ceremony itself left a lasting impression. It flowed beautifully and had a lovely mixture of people presenting and receiving awards. The atmosphere was grounded and respectful, with no pretentiousness, just genuine celebration. Seeing the winners and runners-up recognised was a joy. People were humble but proud, and it was clear that Cancer Research UK staff feel valued. That’s powerful."

Kes believes strongly in the importance of patient involvement. “We bring perspectives that might otherwise be missed. Our stories can inspire researchers to keep going, to find breakthroughs that change lives.”

To the Cancer Research UK staff who were nominated, Kes offers a quote that encapsulates their impact:
“I have learned that suffering, when permeated by love, can have a transforming effect. When I light a candle at midnight, I say to the darkness, I beg to differ.”
Through their work, patients like Kes are reminded that their experiences matter and that progress is possible.

Involving people affected by cancer in staff events like these is so important. Their lived experiences bring depth, authenticity, and insight that help shape research, celebrate progress, and remind us all why the work matters. It’s not just about recognition, it’s about connection, collaboration, and creating a future that reflects the voices of those who’ve lived it.