"I was delighted to take part in a clinical trial as it has the potential to really help others in the future.”
A study testing a quality of life questionnaire for cancer of the gallbladder and bile duct (QoL BIL)
This study looked at a quality of life questionnaire for people with gallbladder cancer and cancer of the bile duct.
More about this trial
It is important to find out how the symptoms of cancer and the side effects of treatment affect people’s
The only questionnaire that people with gallbladder cancer and cancer of the bile duct could fill in was a general one for cancer. It didn’t draw attention to any particular problems that people with gallbladder cancer and cancer of the bile duct had.
The researchers developed a questionnaire (QLQ-BIL21) that looked particularly at the quality of life for people with gallbladder cancer and cancer of the bile duct.
They wanted to find out if it gave a better measure of quality of life for these people when used alongside the general questionnaire.
Summary of results
- 172 people had cancer of the bile duct
- 91 people had gallbladder cancer
- 48 people had died
- 11 people were lost to follow up
- 13 people weren’t well enough
- 3 people for other reasons
- 168 people (66%) did so at the hospital outpatient clinic
- 28 people (10.7%) did so at home
- 20 people (7.8%) did so as a patient in hospital
- 39 people (15.2%) did so elsewhere
- 98 people (38.3%) did so in less than 10 minutes
- 88 people (34.4%) did so between 11 and 15 minutes
- 42 people (16.4%) did so between 16 and 20 minutes
- 23 people (9.0%) did so between 21 and 30 minutes
- 4 people (1.6%) took more than 30 minutes
How to join a clinical trial
Dr John K Ramage
Hampshire Hospitals NHS Foundation Trust
European Organisation for Research and Treatment of Cancer (EORTC)
NIHR Clinical Research Network: Cancer