Involvement news and stories
Your voice, our impact. A landmark report on research collaboration
With the support of people affected by cancer, we published Nothing Should Stand in the Way, a report created with the University of Southampton. It calls for stronger international research partnerships to improve patient outcomes. Your insights shaped every stage of this work, and now policymakers across the UK and EU are taking notice.
10 years of Patient Involvement at Cancer Research UK
For the past decade, people affected by cancer have helped shape our work in powerful ways. From strategy to research, your voices have guided us every step of the way. Walk through the last decade with us and share the milestones that have got us to where we are now.
Co-developing Life Beyond Cancer
People affected by cancer co-developed Life Beyond Cancer. This is a new dedicated webpage which hosts information and support specifically for patients who are post cancer treatment and loved ones supporting a family member during this time.
Involving people affected by cancer in shaping our genomics policy work
The Cancer Research UK Policy Development team have been working on a policy statement to inform government and health leaders about the use of genomics in cancer care now and in the future. At the early stages of this project you were consulted to gather a picture of what you understand about genomics and share your experience.
Helping us to understand the role of carers
The Health Information team wanted to gather the experiences of unpaid carers and the barriers they face. You helped them to understand the role of unpaid carers in helping those they look after to access and understand health information about cancer.
A decade of making a difference through Cancer Research UK’s Involvement Network
We’re marking a decade of patient involvement at Cancer Research UK by sharing stories from members who have been involved with us from the beginning. Meet Sue and Patrick, whose personal experiences inspired 10 years of shaping research and making a difference.
Meet Andrew
"The patient involvement team makes the process of being involved with the group easy. You feel that you’re making a real difference. We’re a diverse group in age, backgrounds, and of course cancer journeys."
Kes, from patient to presenter
A passionate member of our Involvement Network. Kes brought insight, warmth, and authenticity to our staff annual awards as both a judge and presenter. Her story is one of resilience, advocacy, and deep commitment to improving life for people affected by cancer.
Meet Caroline
"What stood out to me most was that he didn’t want others to go through what he went through. That’s why I feel so strongly that lived experience must influence how we work - because Fraser saw the gaps, and in his short time, he tried to fix them, even while fighting for his own life."
Your Voice Matters: Shaping the Future of Cancer Research
Ally Boyle, Co-Chair of Cancer Research UK’s Early Detection and Prevention Patient and Public Involvement (PPI) Panel, shares why involving patients in research decisions is not just important, but essential. find out why this panel is one of the most meaningful initiatives he’s ever been part of.
Meet Nic
"Young people affected by cancer face unique challenges, that demand more attention and support. A wide range of issues arise - from delays in diagnosis and difficulties accessing age-appropriate treatment to a lack of meaningful help for the significant emotional and social impacts cancer has during such a formative stage of life."