Salivary gland cancer resources and support organisations
There are organisations, support groups and other resources to help you cope with salivary gland cancer and the treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
We list organisations and resources below for further information and support. We hope you find these helpful. Cancer Research UK is not responsible for the quality of the information or services they provide.
Head and neck cancer organisations and websites
Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. The charity organise regular networking meetings for those affected (in person or via zoom). The website includes information about treatment, how to cope and patient stories.
Changing Faces provide support and information for people who have any form of visible difference including those caused by cancer. They also provide information on skin camouflage and how to apply specialist cover creams.
Support and advice line: 0300 0120 275 (Monday-Friday, 10am-4pm)
Head office email: info@changingfaces.org.uk
Mouth Cancer Foundation is a charity that supports people affected by head and neck cancer. Its website has information about mouth, throat and other head and neck cancers. The website also has a forum and information on local support groups.
Saving Faces is funding education and research to improve medical treatment and support for people after facial surgery.
Sometimes it can be helpful to talk to someone who has been in a similar situation. Saving Faces can put you in touch with other people who have had facial surgery.
This UK charity has been set up by cancer specialists and people affected by head and neck cancer. They aim to raise awareness about head and neck cancer, provide information and advice, and act as a voice for people with head and neck cancer and their families. Their website also has stories from people with head and neck cancer.
Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They publish booklets about cancer and treatments. Information is available in other languages. They also have an online chat service.
Macmillan Support Line Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
Stopping smoking can be hard, but free services and treatments are able to help.
Quit smoking is an NHS website dedicated to helping people stop smoking. The website has information on how to quit smoking, as well as information on the NHS Quit smoking app.
SPOHNC is an American organisation with a support network for people with head and neck cancers. They have a survivor to survivor network and some useful information, including clinical trials and products that may be helpful if you've had a head and neck cancer.
Macmillan Cancer Support has a wide range of booklets, leaflets, audiobooks and podcasts about cancer and its treatment. You can search their resources to find out what is available.
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer information and support near you
There are organisations and support services in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
England
The NHS website has a service that tells you about local information and support in England.
