"I was delighted to take part in a clinical trial as it has the potential to really help others in the future.”
A study looking at outcome measures in palliative care
Please note - this trial is no longer recruiting patients. We hope to add results when they are available.
This study is looking at questionnaires that are used to measure the results of care and treatment. These types of questionnaires are called outcome measures.
An example of an outcome measure in
This is a scale using numbers from 0 (Not at all) to 4 (Overwhelmingly) to describe how your pain has affected you over a period of time. You, your carer, or a healthcare professional can tick the box that best describes it.
We know from research that using outcome measures can help improve care. These measures can help improve communication between patients, families, doctors, nurses and other healthcare professionals. They can also help identify problems that matter to you and your family.
The researchers want to find out the best way to introduce outcome measures more widely into palliative care and to see if and how they actually make a difference. To do this, the study team will talk to you about outcome measures and ask if you are willing to use them, and if you think using them will make a difference.
They also want to talk to carers, family members or friends, and healthcare professionals working in palliative care, to find out their views about using outcome measures.
The aims of this study are to better understand what happens when outcome measures are used, and if their use can make a difference to your care.
Who can enter
You may be able to join this study if you are at least 18 years old and are being cared for by one of the following south London palliative care teams
- King’s College Hospital
- Princess Royal University Hospital
- Guy’s Hospital and Community
- St Thomas’ Hospital
- Lewisham Hospital and Community
- St Christopher’s Community and Hospice
You may also be able to join this study if you are the carer, a family member, or friend of someone being cared for by one of the above teams and you are at least 18 years old.
If you are a patient, you cannot join this study if your doctor feels you aren’t well enough, or thinks it may be too distressing for you.
If you are a carer, you can’t join if the person you cared for has died.
The study team need 30 patients and carers to join.
You will have an interview with a member of the study team. They will ask your views and thoughts about using outcome measures.
They would like to know
- If you would use them and under what conditions you would be willing to use them
- How using them might make a difference to you
This will take no more than an hour.
If you are a patient, the study team will also ask your permission to look at your medical records. This is so they don’t need to ask you a lot of questions about yourself, such as your age and diagnosis. They will also be able to find out what outcome measures you may have used with your medical team.
The researchers will also ask 30 healthcare professionals to join the study. They will interview them about using outcome measures.
The study team will arrange to talk to you at a time and place that is convenient.
You may get upset or distressed as you share your experience of your care. If you do, you can take a break whenever you need. You can also stop the interview at any time.
How to join a clinical trial
Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.
Dr Fliss Murtagh
King's College London
NIHR Clinical Research Network: Cancer