A study looking at information people receive before they agree to surgery for mouth or oropharyngeal cancer

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Head and neck cancers
Mouth (oral) cancer





This study is looking at the information that people receive before they agree to have surgery for mouth or oropharyngeal cancer.

Doctors talk to patients every day and give them a lot of information. But what they discuss is rarely studied. This study is focusing on the information doctors give to people who have mouth or oropharyngeal cancer. The researchers want to

  • Understand more about the way information is provided
  • Ask people their views on how this could be improved by finding out what information is important to them

Who can enter

You cannot volunteer to take part in this study. You may be asked to take part if you have mouth or oropharyngeal cancer and are being treated in Bristol.

Trial design

The researchers need about 100 people to join the study. If you agree to take part, a member of the research team will arrange to meet you just before you have an appointment with your surgeon. They will ask you some questions about yourself. They will also ask your permission to make an audio recording of the discussion you have with the surgeon.

They will then arrange a follow up meeting with you either at the hospital or in your home if that is more convenient for you. At this meeting, they will ask your views on the way the information was given to you and how you think it could be improved. They would like to make an audio recording of this meeting too.

Over the next year, the research team will send you 2 sets of questionnaires by post or email (whichever you prefer). The questionnaires will ask what information you think is important to share with patients. You can email your answers or post them back in a prepaid envelope, so it won’t cost you anything.

The study team may ask you to have one more meeting with them a few months later.

All the information you provide is confidential Open a glossary item. It will not be possible to identify you in any results from the study.

Hospital visits

The follow up meeting after your hospital appointment will take less than an hour.

You complete the questionnaires at home. They take about 20 minutes each time.

Side effects

There are no side effects from taking part in this study. The researcher will ask how you feel about your hospital appointments. This may cause some anxiety, but you can talk about this with the researcher.

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Barry Main

Supported by

NIHR Clinical Research Network: Cancer
National Institute for Health Research (NIHR)
University Hospitals Bristol NHS Foundation Trust
University of Bristol

Questions about cancer? Contact our information nurses

Freephone 0808 800 4040

Last review date

CRUK internal database number:

Oracle 11559

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Over 60,000 cancer patients enrolled on clinical trials in the UK last year.

Last reviewed:

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