"I was delighted to take part in a clinical trial as it has the potential to really help others in the future.”
A study looking at developing a quality of life questionnaire for anal cancer
Please note - this trial is no longer recruiting patients. We hope to add results when they are available.
This study is looking at developing a quality of life questionnaire for people with anal cancer.
It is important to find out how the symptoms of cancer and side effects of treatment affect people’s
At the moment, people with anal cancer may fill in a general questionnaire. But researchers would like to create a quality of life questionnaire specifically for anal cancer.
To begin with, they will ask people how anal cancer and its treatment has affected them. They want to find out more about quality of life issues that people with anal cancer have. The researchers aim to use this information to develop a quality of life questionnaire specifically for people with anal cancer.
Who can enter
If you agree to take part in this study, you have an interview with a researcher. They will ask you a few questions about yourself. They will then ask how your
They will show you a general cancer quality of life questionnaire and ask if you think the questions are relevant to you, and if you think there is anything missing from the questionnaire.
The researcher will ask your permission to make an audio recording of the interview. The study team will also ask your permission to look at your medical notes to collect information about your disease and treatment.
All the information you give is
The interview will take place in a quiet room at the hospital. It will take up to an hour.
There are no side effects from taking part in this study. You may find it distressing to talk about issues relating to your cancer. If you do become upset, you can stop the interview at any time.
How to join a clinical trial
Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.
Mr C.D. Johnson
European Organisation for Research and Treatment of Cancer (EORTC)
NIHR Clinical Research Network: Cancer
University Hospital Southampton NHS Foundation Trust