A study to find out the role of information sources used before a diagnosis of lung cancer

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Lung cancer





This study is trying to find out how people use websites and other sources of information to find out about lung cancer before a diagnosis.

Some people may use the internet and other sources of information to find out about symptoms of lung cancer before going to their doctor. The researchers want to know more about how this information influenced their decision to go to their doctor. And how people rated the information they found.

The main aims of this study are to

  • Identify the information sources people used
  • Find out how they rated the information sources
  • Find out how it influenced their decision to see their doctor

You won’t get any direct benefit from taking part, but the information collected may help to develop ways of helping people with lung cancer to find information and seek medical help in a timely manner.

Who can enter

You may be able to join this study if you are going to a lung cancer clinic in the North West of England and have been diagnosed with lung cancer in the past 6 months.

You cannot join this study if you were diagnosed with lung cancer more than 6 months ago.

Trial design

The researchers need 120 people from the North West of England to join.

You fill in a questionnaire. The questions will ask about

  • Your personal details, such as age
  • Your experience of being ill before you were diagnosed
  • What information you found before you were diagnosed
  • How you rated this information
  • Your use of the internet before you were diagnosed

The researchers may ask you to take part in an interview. They will ask you more about what it was like for you before your diagnosis. And what it was that helped you to decide to see your doctor. This will take about an hour and will be audio recorded. It can take place at a location of your choice where you feel comfortable, such as your home. Or if you prefer, you can have it at another location, such as the clinic. You don’t have to agree to taking part in the interview, you can still take part in the main study.

Hospital visits

There are no extra hospital visits if you take part in this study.

Side effects

The researchers don’t expect it, but some of the questions may cause you to be upset. You don’t have to answer any questions that you don’t want to.

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Ms Julia Mueller

Supported by

Medical Research Council (MRC)
NIHR Clinical Research Network: Cancer
University of Manchester

Questions about cancer? Contact our information nurses

Freephone 0808 800 4040

Last review date

CRUK internal database number:

Oracle 12193

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Cara took part in a clinical trial

A picture of Cara

"I am glad that taking part in a trial might help others on their own cancer journey.”

Last reviewed:

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