After your breathing stoma surgery

About breathing stomas

You can see when and how you might have a breathing stoma in our surgery section. 

Read more about when and how you might have a stoma

There are different types of breathing stomas. Your doctor can tell you which stoma you will have. 

You might have a temporary stoma if you keep your voice box after surgery. Or a permanent stoma if your voice box is removed during surgery.  

Read more about the different types of breathing stoma

Waking up with a stoma

Waking up to find you are breathing through a hole in your neck can be quite a shock. Even if you were expecting it. At first, you might feel frightened and angry. And it can be difficult to cope with the changes you need to make. Your healthcare team will support you during this time. They will show you how to look after the stoma and help you through the emotions you are going through.  

Your doctor discusses all aspects of this with you before your operation. It’s very important that you understand what will happen to you, so do ask questions. The doctors and nurses looking after you expect you to have questions and want to reassure you as much as they can.

After having your voice box removed (laryngectomy)

After having your voice box removed, a tube is put into your stoma at first. This keeps your new airway open. 

The tube is taken out once your stoma heals. Your stoma then stays open on its own. This may take a few weeks. Your nurse shows you how to look after the tube and the stoma during this time. 

How to look after your breathing stoma

Before you leave hospital

Before you leave the hospital, it is important that you feel confident about how to look after your stoma. Your speech therapist and nurses will show you and a family member or friend about this before you go home. But once you are at home, things can seem very different. You might feel lost outside the safety of the hospital.

Ask as many questions as you need while you are still in hospital. Also practise looking after the stoma and tubes as much as you can. It helps if a family member or friend you see regularly is with you when you speak to your healthcare team so they can see and learn what to do.

Even if you manage well in hospital, you might feel less confident when you get home. You have had a lot of information to take in. The nurses understand if you need to call the ward for advice. Your stoma nurse will arrange to visit you at home to check how you are getting on.

Your healthcare team will give you contact numbers. Or you can call the hospital 24 hour advice line if you have any concerns when you are at home.

Read more about life with a breathing stoma