Resources and support organisations for people with hairy cell leukaemia
There are organisations, support groups, audiobooks, videos and other resources to help you cope with hairy cell leukaemia and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Blood Cancer UK funds research, provides information and support to those affected by blood cancer. They publish information booklets and you can also connect and share experiences with other people dealing with blood cancer.
Support line: 0808 2080 888
Support line opening hours are:
10 am to 4pm on Monday, Wednesday, Thursday and Friday
The CLL Support Organisation provides information and support to people with chronic lymphocytic leukaemia and their carers. It also promotes research into the treatment of CLL.
The Leukaemia Cancer Society is a charity that provides information, support and has a befriending service. It's also involved in organising events to recruit donors for the stem cell registry, fundraising for research and raising awareness of blood cancers.
Leukaemia Care is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support.
It provides a range of support services to patients and their carers, including information, support groups, patient and carer conferences, and buddy support. The buddy support service is available if you want to chat to someone who has had a similar experience.
Freephone helpline: 08088 010 444, open Monday to Friday 9am to 4:30pm
The African Caribbean Leukaemia Trust (ACLT) aims to increase the number of stem cells, blood and organ donors from all ethnicities, with a focus on African and Caribbean people in the UK who need a transplant.
Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website. It also provides information about being a stem cell or bone marrow donor.
It is looking for people in good health aged 16–30 to join the stem cell register. In particular, they need more people from minority ethnic communities to sign up.
General enquiries: 0303 303 0303, open Monday to Friday 9am to 5pm
DKMS used to be called Delete Blood Cancer. It aims to provide a matching donor for every blood cancer patient in need of a blood stem cell donation. It has offices in the UK, Germany, Chile, Poland, India, Africa and the United States.
People between the ages of 18 to 55 and are in general good health can join the register.
The NHS Blood and Transplant service runs the blood donation scheme and organises the supply of blood products. They also run the NHS Stem Cell Donor Registry. This was previously called the British Bone Marrow Register (BBMR). They help find people stem cell matches.
Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
Find local cancer information and support near you
There are organisations and support services in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
England
The NHS website has a service that tells you about local information and support in England.
