Find organisations, books, videos and other resources to help you cope with hairy cell leukaemia and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.
Cancer Chat is our online forum where you can share experiences.
Specific leukaemia organisations and sites
Blood Cancer UK fund research into leukaemia, lymphoma and myeloma. It also provides patient information booklets and leaflets that you can download or order from their website.
Support line: 0808 2080 888 (10am to 7pm, Monday to Friday and 10am to 1pm on Saturday and Sunday)
Leukaemia Care is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support.
It provides a range of support services to patients and their carers, including information, support groups, patient and carer conferences, and nurse education days.
Nurse or support team number: Freephone 08088 010 444 (Monday to Friday 9am to 10pm, Saturdays 9am to 12:30pm).
The CLL Support Organisation provides information and support to people with chronic lymphocytic leukaemia and their carers. It also promotes research into the treatment of CLL.
Tel: 0800 977 4396
Blood and bone marrow organisations
Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website. It also provides information about being a stem cell or bone marrow donor.
It is looking for people in good health aged 16–30 to join the Anthony Nolan register. In particular, they need more young men and people from black and minority ethnic communities to sign up.
General enquiries: 0303 303 0303
The National Blood Service runs the blood donation scheme and organises the supply of blood products. They also run the British Bone Marrow Register. People aged between 17 and 40 can join the register. Let the staff know you are interested in being a stem cell or bone marrow donor when you next donate blood.
Phone the number below or look at the website for more information about becoming a blood stem cell or bone marrow donor.
Tel: 0300 123 2323
DKMS used to be called Delete Blood Cancer. It aims to provide a matching donor for every blood cancer patient in need of a blood stem cell donation. It has offices in the UK, Germany, Chile, Poland and the United States. The register now has more than 300,000 people in the UK.
People between the ages of 18 to 55 and are in general good health can join the register.
Phone: 020 8747 5620
Other support and information organisations
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
Booklets, CDs and factsheets from other organisations
- Healthy eating and cancer
- Lost for words – how to talk to someone with cancer
- Sexuality and cancer
- Understanding chemotherapy (also on CD)
- Understanding cancer research trials (clinical trials)
- Talking to children and teenagers when an adult has cancer (also on CD)
- Talking about your cancer
- Hairy Cell Leukaemia (HCL)
- Newly diagnosed with a blood cancer
- Watch and wait – monitoring while treatment is not necessary
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Find local cancer information and support
NHS Choices helps you to find local cancer information and support.