"I am glad that taking part in a trial might help others on their own cancer journey.”
A study to improve follow up care after treatment for women with gynaecological cancer
Please note - this trial is no longer recruiting patients. We hope to add results when they are available.
This study is looking at improving the follow up care of women who have had treatment for a gynaecological cancer. It is open to women who are going to a follow up clinic in Wales and have been treated for one of the following gynaecological cancers
More about this trial
Currently there are no national guidelines for doctors to follow up women who have been treated with a gynaecological cancer. Each doctor has their own way of doing this. So it is not sure what is the best way to provide follow up for these women.
It is also not sure what follow up these women would like.
In this study researchers will to talk to women who have had treatment to find out what kind of follow up they would like. They will also talk to their carers such as family members or friends.
The aim of the study is to find what areas of follow up care are important to women and their carers. The researchers hope their findings will contribute to the development of national guidelines for the follow up of women after treatment.
Who can enter
You may be able to join this study if you and have one of the following cancers
- Have had treatment with the aim to cure
- Have gone to least 1 follow up appointment
- Are at least 18 years old
You may be able to join the study if you are a family member or friend who is at least 18 years old and caring for someone in the above situation.
You cannot join this study if any of these apply
- There were signs that your cancer has started to grow again at your last follow up appointment
- You aren’t able to give
As a carer you cannot join this study if you aren’t able to give informed consent.
This is a pilot study. The study team need 100 women to join.
A member of the health team will talk to you about the study at a routine follow up appointment.
You fill in a questionnaire asking about
- Yourself and your cancer experience
- How you are feeling
- What kind of follow up care you would like
It will take about 30 minutes to complete. You can complete the questionnaire at the clinic and hand it back to one of the team. If you prefer you can take it home to complete and return it in the freepost envelope provided.
The team also need 50 carers to join the study. You fill in a questionnaire asking about
- Yourself and your role as a carer
- How you are feeling
- What kind of follow up care you think would be best for the person you are caring for
Health professionals, such as nurses and doctors, will also be asked to complete a questionnaire about follow up care for these women.
There are no extra visits if you agree to take part.
There are no side effects.
How to join a clinical trial
Mrs Laura Timmis
NIHR Clinical Research Network: Cancer
Tenovus Cancer Care