Non functioning neuroendocrine tumours of the pancreas

Neuroendocrine tumours (NETs) are rare tumours that start in neuroendocrine cells of the pancreas. There are different types of pancreatic NETs, including non functioning pancreatic NETs. 

Non functioning means that the NET doesn't make hormones. Or makes hormones that don't cause a set of symptoms (a syndrome).

What are non functioning pancreatic NETs?

Non functioning pancreatic NETs are the most common type of NETs of the pancreas. 

Symptoms of non functioning pancreatic NETs

Symptoms of non functioning pancreatic NETs include tummy (abdominal) pain and weight loss. 

Getting diagnosed

You have some tests to diagnose a non functioning pancreatic NET. This might include blood tests and scans. 

Stages and grades of pancreatic NETs

The stage and grade of a pancreatic NET helps your doctor decide which treatment you need.

Treatment

The treatment you have depends on a number of things such as where the non functioning pancreatic NET is, its size and whether it has spread.

Research and clinical trials for pancreatic NETs

Researchers are looking at improving the diagnosis, treatment and quality of life of people with pancreatic NETs.

Follow up

You have follow up appointments to check how you are and see if you have any problems or worries.

Living with NETs

Get practical and emotional support to help you cope with a neuroendocrine tumour.

Risks and causes of pancreatic NETs

There are some factors that increase your risk of developing a pancreatic NET. This includes some medical conditions.

Survival

Survival for non functioning NETs of the pancreas depends on different factors. So no one can tell you exactly how long you will live.

Last reviewed: 
28 Jun 2021
Next review due: 
28 Jun 2024
Json LD: 
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