Follow up for neuroendocrine cancer
After treatment for neuroendocrine cancer, you have regular check ups. These are at the hospital, although some appointments might be by telephone. This is called follow up.
You might also have tests including blood tests, x-rays and scans. Over time, these appointments become less frequent.
Why you have follow up appointments
You usually have follow up appointments to check how you are and see whether you have any problems or worries. The appointments also give you the chance to raise any concerns you have about your progress.
How often you have appointments
How often you see your doctor depends on:
- the grade of your neuroendocrine cancer
- the type of neuroendocrine cancer
- whether it has spread to other parts of the body
- what treatment you have had
- any side effects you might have
You might have a follow up appointment every 6 to 12 months if you have had surgery to fully remove a neuroendocrine tumour (NET). Appointments might be more often than this if you:
- have a fast growing cancer.
- can't have surgery
- are having treatment to control your symptoms rather than to cure your neuroendocrine cancer
What happens at your appointment
Your doctor or nurse ask:
- how you are feeling
- whether you have had any symptoms or side effects
- if you are worried about anything
You might also have tests at some visits. The tests might include:
- blood tests
- urine tests
- scans
Between appointments
Contact your doctor or specialist nurse if you have any concerns between appointments. You should also contact them if you notice any new symptoms. You don’t have to wait until your next visit.
Many people find their check ups quite worrying. A hospital appointment can bring back any anxiety you had about your cancer.
It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling during or after cancer treatment.
You can also find people to share experiences with by using our online forum, CancerChat.
Neuroendocrine Cancer UK
Neuroendocrine Cancer UK is a UK wide charity providing support and information to those affected by neuroendocrine cancer. They also have a helpline.
