What are neuroendocrine tumours (NETs)?

Neuroendocrine tumours (NETs) are rare tumours that start in neuroendocrine cells. This group of tumours are also called neuroendocrine neoplasms (NENs). 

Getting diagnosed

Find out about seeing your GP, referral to a specialist and the tests you might have to diagnose a NET.


Treatment depends on the type of NET you have, where the tumour is, its size and whether it has spread (the stage).

Carcinoid syndrome

Carcinoid syndrome is a group of symptoms that some people get when they have a neuroendocrine tumour (NET). These symptoms happen when the tumour makes large amounts of hormones.

Lung neuroendocrine tumours (NETs)

Lung NETs are rare cancers that start in the neuroendocrine cells of the lung. Some types of lung NETs are called carcinoid tumours.

Stomach neuroendocrine tumours (NETs)

Stomach NETs are rare tumours starting in the neuroendocrine cells of the stomach. You might also hear them called neuroendocrine neoplasms (NENs) or neuroendocrine carcinomas (NECs). 

Small bowel neuroendocrine tumours (NETs)

Small bowel NETs are rare. These tumours start in the neuroendocrine cells of the small bowel.

Large bowel and rectal neuroendocrine tumours

Large bowel and rectal NETs are rare cancers that start in the neuroendocrine cells. Some types of NETs are called carcinoid tumours.

Neuroendocrine tumours of the pancreas

There are different types of NETs of the pancreas. They are usually grouped into functioning NETs and non functioning NETs.

Merkel cell carcinoma (MCC)

 MCC is a rare type of skin cancer that starts in Merkel cells. Its is also called a type of neuroendocrine tumour (NET). 

Living with NETs

Get practical and emotional support to help you cope with a neuroendocrine tumour.

Last reviewed: 
09 Jun 2021
Next review due: 
06 Jun 2024