Follow up for gastrinoma

After treatment for gastrinoma, you have follow up appointments to check how you are and see if you have any problems or worries. The appointments also give you the chance to raise concerns about your progress.

What happens

Your doctor or nurse may examine you at each appointment. They ask how you are feeling, whether you have had any symptoms or side effects, and if you are worried about anything. 

You might also have tests at some visits. The tests may include:

  • blood tests
  • CT scan
  • radioactive scan (octreotide or gallium PET scan)

Between appointments

Contact your doctor or specialist nurse if you have any concerns between appointments. You should also contact them if you notice any new symptoms. You don’t have to wait until your next visit.

Many people find their check ups quite worrying. A hospital appointment can bring back any anxiety you had about your cancer.

It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling during or after cancer treatment.

You can also find people to share experiences with by using our online forum, CancerChat.

Cancer Research UK nurses

For support and information, you can call the Cancer Research UK information nurses. They can give advice about who can help you and what kind of support is available. Freephone: 0808 800 4040 - Monday to Friday, 9am to 5pm.
Last reviewed: 
13 Jul 2021
Next review due: 
13 Jul 2024
  • Gastroenteropancreatic neuroendocrine neoplasms: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up
    M. Pavel and others
    Annals of Oncology 2020, Vol 31, Issue 5 

  • Gastrinoma (Duodenal and Pancreatic) 
    R T Jensen and others
    Neuroendocrinology, 2006. Vol 84, Pages 173-182

  • ENETS consensus guidelines for the management of patients with digestive neuroendocrine neoplasms: functional pancreatic endocrine tumor syndromes
    R T Jensen and others
    Neuroendocrinology, 2012. Vol 95, Pages 98-119

  • Neuroendocrine tumors of the pancreas
    F Ehehalt and others
    The oncologist, 2009. Vol 14, Pages 456-467

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