Living with myeloma
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Contact our cancer information nurses
Cancer Chat is our online forum where you can share experiences.
Myeloma UK is dedicated to funding research, providing information and supporting those with myeloma. They produce booklets and videos. Booklets are available on their website, or they will send you an information pack. They can provide a list of myeloma support groups in the UK. They have an online discussion forum and myeloma TV.
Helpline: 0800 980 3332 (Freephone Mon to Fri, 9.00am to 5.00pm)
Email: askthenurse@myeloma.org.uk
This website has information about clinical trials that are taking place in the UK and guidelines for the diagnosis and treatment of myeloma. This is really a site for researchers and doctors with an interest in myeloma. Much of the information is written in a very scientific way.
Blood Cancer UK funds research, provides information and support to those affected by blood cancer. They publish information booklets and you can also connect and share experiences with other people dealing with blood cancer.
Support line: 0808 2080 888
Support line opening hours are:
10 am to 4pm on Monday, Wednesday, Thursday and Friday
10 am to 7pm on Tuesday
10 am to 1 pm on Saturdays and bank holidays
Email address: support@bloodcancer.org.uk
Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
There are organisations and support services in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
The NHS website has a service that tells you about local information and support in England. Go to the NHS website
NHS Inform gives information about illness, treatments and NHS services for people in Scotland. Go to NHS Inform
NHS 111 Wales gives health advice and information for people living in Wales. Go to NHS 111 Wales
The Northern Ireland Cancer Network (NICaN) website tells you where to find cancer information and support in Northern Ireland. Go to the Northern Ireland Cancer Network website
Last reviewed: 08 Dec 2023
Next review due: 08 Dec 2026
Myeloma is a type of blood cancer that develops from plasma cells made in the bone marrow. Bone marrow is the spongy tissue found inside the inner part of some of our large bones.
You usually start by seeing your GP. They might refer you to a specialist and organise tests.
The main treatments for myeloma include targeted cancer drugs, chemotherapy and steroids.
Practical and emotional support is available to help you cope with myeloma.
Researchers around the world are looking at treatments for myeloma.
About Cancer generously supported by Dangoor Education since 2010. Learn more about Dangoor Education
Search our clinical trials database for all cancer trials and studies recruiting in the UK.
Connect with other people affected by cancer and share your experiences.
Questions about cancer? Call freephone 0808 800 40 40 from 9 to 5 - Monday to Friday. Alternatively, you can email us.
