See your doctor if you notice a change that isn't normal for you or if you have any of the possible signs and symptoms of chronic leukaemia.
Even if you're worrying about what the symptom might be, you shouldn't delay seeing your GP. Your worry is unlikely to go away if you don't make an appointment. It might not be leukaemia. But if it is, the earlier it is picked up the more likely it is that it can be treated successfully. You won't be wasting your doctor's time.
Many people with chronic lymphocytic leukaemia (CLL) won't have any symptoms at all. You might see your GP because they have noticed an abnormality in a routine blood test for something else and you don't have any other symptoms.
Getting the most out of your GP appointment
When you see the doctor, it can be difficult to remember everything you want to say. These tips will help you get the most out of your appointment.
- Write down your symptoms including when they started, when they happen and how often you have them.
- Write down anything that makes them worse or better.
- Tell your GP if you are worried about cancer.
- Tell them if you have any family history of cancer.
- Take a friend or relative along for support - they could also ask questions and take notes to help you remember what the GP says.
- Ask the GP to explain anything you don’t understand.
- Ask the GP to write things down for you if you think it might help.
What happens during your GP appointment
Your doctor needs to build up a picture of what's going on. So they will ask you some questions. These include:
- what symptoms you have
- when you get them
- whether anything makes them better or worse
They will ask you about your general health and any other medical conditions you have.
During the appointment your doctor may want to examine you. You can ask for someone else to be in the room if you want, to act as a chaperone. This chaperone can be a friend or relative, or a trained health professional such as a practice nurse. They can be with you during the examination or throughout the appointment.
If you would rather see a male or a female doctor it is worth asking when you book the appointment.
Tests your GP might do
When examining you, your GP might check any areas of swelling or areas that have been painful.
Your GP might also arrange for you to have a blood test. This is to check the levels of white and red blood cells and platelets.You might have this test at your GP practice or at your local hospital.
Depending on the results of your examination and the blood test the GP may then refer you to a specialist.
Questions you might want to ask your GP
- Do I need to see a specialist? Is it urgent?
- When will I see them?
- Where will I see them?
- Will I find out about my appointments by post or telephone?
- Do I need tests? What will they involve?
- How long should I expect to wait?
- Where can I find out more about tests?
- Do I have to do anything in preparation for this test?
- When will I get the results and who will tell me?
Your GP might not be able to answer all of your questions. They will tell you what they can at this point. Not knowing is difficult to cope with and can make you anxious.
Speaking to a friend or relative about how you feel might help.
If your GP doesn't think you need any tests or a referral
- Can you explain why I don’t need to have tests or see a specialist?
- Is there anything I can do to help myself?
- Do I need to see you again?
- Who do I contact if my symptoms continue or get worse, especially during the night or at weekends?
What happens next?
Make sure you know what happens next. Make another appointment if your symptoms don’t clear up, or if they change or get worse.
How to find a GP
If you don’t have a GP, you can find a doctor’s surgery in your local area by going to:
Making a GP appointment
To make an appointment to see your GP you can:
- telephone your GP practice
- book an appointment online through your GP practice website (if they have one)
- use the NHS App
Try different times of the day if it's difficult to get through by phone. It could be particularly busy at the beginning of the day. You don’t have to tell the receptionist what you want to see the doctor for, although sometimes it might help to explain your situation.
You might be able to go in person to book an appointment at some GP practices. But at the moment most practices do not provide this service. It may help to see if your GP practice has a website, this will explain the best way to get an appointment.
The receptionist at your GP’s practice will usually offer you a telephone or video appointment first. Your GP will ask you to make another appointment if they need to see you again. You may be asked to attend in person, especially if they need to examine you. The receptionist will give you a date and time for this.
Accept a booked appointment, even if you think it’s a long time to wait. You could ask about cancellations if you are able to get to the practice at short notice. Do check that they have the right contact details for you, including your telephone number and email.