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Getting diagnosed

Screening for chronic lymphocytic leukaemia (CLL)

There is no national screening programme for CLL in the UK. Many people with CLL are diagnosed when having a blood test for another reason, and before they have symptoms.

What is cancer screening?

Screening means testing people for early stages of a disease before they have any symptoms. For screening to be useful the tests:

  • need to be reliable at picking up cancers

  • overall must do more good than harm to people taking part

  • must be something that people are willing to do

Screening tests are not perfect and have some risks. The screening programme should also be good value for money for the NHS.

Find out more about cancer screening

Why is there no screening programme for CLL?

There is no national screening programme because:

  • this condition is rare, so many people would have unnecessary tests

  • the benefits don't outweigh the costs

Talk to your GP if you think you are at higher than average risk of CLL. Or if you have any symptoms of chronic leukaemia.

Read more about risks and causes of CLL

Find out about possible symptoms of CLL

Watch and wait

CLL is different from most cancers because it is not usually possible to cure it but it is a very slowly developing disease. Some people live for many years without symptoms or treatment.

These people are monitored closely by their doctor. This monitoring is called watch and wait, or watchful waiting. If the leukaemia starts to cause symptoms treatment can then control the CLL for a long time.

Find out more about watch and wait

Last reviewed: 15 Aug 2024

Next review due: 15 Aug 2027

Seeing your GP about CLL

See your GP if you notice a change that isn't normal for you or if you have any of the possible signs and symptoms of chronic leukaemia.

Referral to a specialist for CLL

Your GP should refer you for an urgent blood test if your symptoms could be due to CLL.

Tests for CLL

Your doctor can usually diagnose CLL by doing a number of checks on your blood sample cells. These are called immunophenotyping tests. You then may have other tests to find out more information about your CLL.

What is chronic lymphocytic leukaemia?

Chronic lymphocytic leukaemia (CLL) is a cancer that affects the white blood cells called lymphocytes. It tends to develop very slowly.

CLL main page

CLL affects the white blood cells called lymphocytes. It tends to develop very slowly. Find out about the treatment you might need and much more.

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