There are many organisations, support groups, books, videos and other resources to help you cope with bowel cancer and treatment. You can also find out about suppliers of stoma appliances.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.
Cancer Chat is our online forum where you can share experiences.
Bowel cancer support organisations
Founded by Bobby Moore's wife, in partnership with Cancer Research UK, this organisation raises money for research into bowel cancer. It also aims to raise awareness of the symptoms so that people are diagnosed earlier.
Phone: 020 3469 8881
Bowel Cancer UK raise awareness of bowel cancer and campaign for better treatments and care. They provide information about bowel cancers, including anal and rectal cancers through their website and leaflets and they have an online forum.
Nurse email: firstname.lastname@example.org
Telephone: 020 7940 1760
General support organisations
A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition.
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
This is a UK support group for people with a colostomy. It provides information and support, as well as booklets to anyone who has or is about to have a colostomy.
95 London Street
Tel: 0118 939 1537
Free helpline: 0800 328 4257(24 hrs a day, 7 days a week)
The IA aims to help anyone who needs or has had an ileostomy or internal pouch. It has a network of branches throughout the UK which give advice, information leaflets, and home and hospital visiting. The website hosts forums for discussion. The organisation has a membership fee.
Freephone: 0800 018 4724
Advice and leaflets on impotence and its treatment.
This charity aims to provide information and support to people with Lynch syndrome and their families, and to raise awareness of this syndrome. They also provide support through their Facebook page Lynch Syndrome UK Online.
The Bladder and Bowel Community supports and connects people living with bladder and bowel disorders. Their confidential telephone helpline gives help in 10 languages. They can also advise you on stoma products.
The community can give you a Just Can't Wait toilet card. This gives you quick access to toilets when you're out and about in shops, cafes, pubs and so on.
The community was previously called the Bladder and Bowel Foundation.
Helpline: 0800 031 5412
Tel: 01926 357 220
Phone: 020 7250 8181 (Monday to Friday, 10am to 12.30pm and 1.30pm to 4pm)
National disability organisation. Formed in January 2012 through a merger of Disability Alliance, RADAR (Royal Association for Disability Rights) and National Centres for Independent Living. They provide a number of helplines for a variety of issues.
Suppliers of stoma appliances
A company that provides products for people with stomas. They have a delivery service for prescribed appliances.
Tel: 0800 521377 (Customer Care team)
There are also handcrafted ostomy covers available. These come in different shapes and sizes and are made of a wide range of fabrics. Cancer Research UK is unable to list all the different companies that make these handcrafted covers. However, if you search the internet you can find different options available.
Books about bowel cancer
An easy to read guide to bowel cancer. It includes information about lowering your risk, causes, tests, treatment and living with bowel cancer.
DS Bub, SL Rose and WD Wong
Jones & Bartlett Publishers, 2011
A comprehensive book about all aspects of colorectal cancer. It is an American book so some aspects will not apply to the UK.
Hodder and Stoughton, 2007
An easy to read guide to bowel cancer, written by an expert bowel surgeon. The book explains the structure of the bowel, how bowel cancer develops and its symptoms. Patients and carers are led through different treatments, after care and life after treatment.
Mark Davies, 2011
A personal story using male humour from Mark Davies who was diagnosed with bowel cancer at the age of 31. Some people may find it a little crude but others find it amusing. Discusses his diagnosis, treatment and the challenges of living with bowel cancer.
Information for children
K Chilman-Blair and S deLoache
American Cancer Society, 2013
An American illustrated book about bowel cancer aimed at children aged 10 to 16 years.
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.