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Resources and organisations

There are many organisations, support groups, books, videos and other resources to help you cope with bowel cancer and treatment. You can also find out about suppliers of stoma appliances.

Cancer Research UK

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website. 

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

We also have news, health awareness leaflets and other resources on cancer. 

Bowel cancer support organisations

Founded by Bobby Moore's wife, in partnership with Cancer Research UK, this organisation raises money for research into bowel cancer. It also aims to raise awareness of the symptoms so that people are diagnosed earlier.

Phone: 020 3469 8881

Bowel Cancer UK raise awareness of bowel cancer and campaign for better treatments and care. They provide information about bowel cancers, including anal and rectal cancers through their website and leaflets and they have an online forum. 

Nurse email: nurses@bowelcanceruk.org.uk

Telephone: 020 7940 1760

General support organisations

Phone: 01372 744338
Email: info@prda.org.uk 
Contact form: http://www.prda.org.uk/get-in-touch/ 

A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition.

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

This is a UK support group for people with a colostomy. It provides information and support, as well as booklets to anyone who has or is about to have a colostomy.

Enterprise House
95 London Street
Reading
Berkshire
RG1 4QA

Tel: 0118 939 1537
Free helpline: 0800 328 4257(24 hrs a day, 7 days a week)
Email: info@colostomyuk.org

The IA aims to help anyone who needs or has had an ileostomy or internal pouch. It has a network of branches throughout the UK which give advice, information leaflets, and home and hospital visiting. The website hosts forums for discussion. The organisation has a membership fee.

Freephone: 0800 018 4724
Email: info@iasupport.org

Guts UK produce information and leaflets on common digestive diseases and illnesses, including bowel cancer.

Tel: 020 7486 0341
Email: info@gutscharity.org.uk

Advice and leaflets on impotence and its treatment.

This is a support group for those with the Familial Adenomatous Polyposis gene.

Email: enquiries@fapgene.com 

This charity aims to provide information and support to people with Lynch syndrome and their families, and to raise awareness of this syndrome. They also provide support through their Facebook page Lynch Syndrome UK Online.

The Bladder and Bowel Community supports and connects people living with bladder and bowel disorders. Their confidential telephone helpline gives help in 10 languages. They can also advise you on stoma products.

The community can give you a Just Can't Wait toilet card. This gives you quick access to toilets when you're out and about in shops, cafes, pubs and so on.

The community was previously called the Bladder and Bowel Foundation.

Helpline: 0800 031 5412
Tel: 01926 357 220
Email: help@bladderandbowel.org

General Medical Helpline: 020 8994 9874 ( Mondays to Fridays 6pm-8pm)
Email: office@medicaladvisoryservice.org.uk

The Medical Advisory Service offers information and advice on medical and health care matters.

Phone: 020 7250 8181 (Monday to Friday, 10am to 12.30pm and 1.30pm to 4pm)
Email: enquiries@disabilityrightsuk.org

National disability organisation. Formed in January 2012 through a merger of Disability Alliance, RADAR (Royal Association for Disability Rights) and National Centres for Independent Living. They provide a number of helplines for a variety of issues.

Suppliers of stoma appliances

Delivers supplies of prescription colostomy and ileostomy equipment to people's homes.

Tel: 0800 587 4047 or 03301 233 188 from a mobile
Email: help@charter.co.uk

Delivers supplies of prescription colostomy and ileostomy equipment. Also gives information on all areas of stoma care. Has a helpline for anyone who has a stoma.

Tel: 0800 834 822 (Monday to Friday 9am to 5pm)
Email: stoma.webcare@convatec.com

A company that provides products for people with stomas. They have a delivery service for prescribed appliances.

Tel: 0800 521377 (Customer Care team)

Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma such as an ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.

Tel: 01205 723327
Email: lindabutler59@hotmail.com

Books about bowel cancer

Ian Eustace
BXPLANS.LTD, 2018
ISBN 1910843997

An easy to read guide to bowel cancer. It includes information about lowering your risk, causes, tests, treatment and living with bowel cancer.

DS Bub, SL Rose and WD Wong
Jones & Bartlett Publishers, 2011
ISBN 978-1449622923

A comprehensive book about all aspects of colorectal cancer. It is an American book so some aspects will not apply to the UK.

John Northover
Hodder and Stoughton, 2007
ISBN 0340927461

An easy to read guide to bowel cancer, written by an expert bowel surgeon. The book explains the structure of the bowel, how bowel cancer develops and its symptoms. Patients and carers are led through different treatments, after care and life after treatment.

Biography

M Davies
Mark Davies, 2011
ISBN 9780955903625

A personal story using male humour from Mark Davies who was diagnosed with bowel cancer at the age of 31. Some people may find it a little crude but others find it amusing. Discusses his diagnosis, treatment and the challenges of living with bowel cancer. 

Information for children

K Chilman-Blair and S deLoache
American Cancer Society, 2013
ISBN 1604432020

An American illustrated book about bowel cancer aimed at children aged 10 to 16 years.

Videos of people's stories

Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.

Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.

Go to the HealthTalk website

Find local cancer support and information services

NHS Choices has a service that tells you about local information and support.

Go to NHS choices website 

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.