You might need some care and support at home due to acute lymphoblastic leukaemia (ALL) or its treatment. A lot of practical and emotional support is available to you.
Unlike some other cancer types, you continue to have treatment or follow up for ALL with your treating hospital. But it's important not to forget that you still have your GP. They are available for support, advice or if you have a health concern. They can help with any medical problems that come up. They can also make referrals to a community service for you. The availability of the different community services may vary, depending on where you live
Community or district nurse
These nurses work in different places in your local area and may visit you in your home. They can:
- give medicines or injections
- check temperature, blood pressure and breathing
- clean and dress wounds
- monitor or set up drips
- give emotional support
- teach basic caring skills to family members where needed
- get special equipment, such as commodes or bed pans
Community specialist palliative care nurses
Community specialist palliative care nurses include Macmillan nurses and hospice nurses. They specialise in advice about pain control, sickness and other symptoms of leukaemia. They also give emotional support to you and your carers.
Social workers can help to support you with your situation at home. They can arrange:
- home helps to help with shopping or housework
- home care assistants for washing and dressing
- meals on wheels
- respite care
Your social worker can also help with money matters by checking you get all the benefits you are entitled to. Or they can advise you about charity grants for things like extra heating costs or special diets.
Contact a social worker yourself by getting in touch with your local social services office. Or ask your hospital nurse or your GP to refer you.
Local support services
There are many other sorts of help you can get. Services vary from place to place.
Sometimes local voluntary groups offer sitting services. Someone comes to stay with you while your relative goes out.
Good neighbour schemes offer befriending or practical help with shopping or transport.
Local cancer support groups often offer practical help. And they are a good source of information about services in your area. Ask your doctor or nurse about local groups.