Hodgkin lymphoma statistics

Cases

New cases of Hodgkin lymphoma, 2012, UK

Deaths

Deaths from Hodgkin lymphoma, 2012, UK

Survival

Survive Hodgkin lymphoma for 10 or more years, 2010-11, England and Wales

Prevention

Preventable cases of Hodgkin lymphoma, UK

  • Around 1,800 people were diagnosed with Hodgkin lymphoma in 2012 in the UK, that’s around 5 people every day.
  • Hodgkin lymphoma accounts for less than 1% of all new cases in the UK (2012).
  • In men, Hodgkin lymphoma is the 19th most common cancer in the UK, with around 1,000 cases diagnosed in 2012.
  • In women, there were around 800 cases of Hodgkin lymphoma diagnosed in the UK in 2012.
  • Hodgkin lymphoma can develop at any age, but there are two peaks in incidence – in young adults, and older men and women.
  • A tenth (10%) of Hodgkin lymphomas are diagnosed in people aged 75 and over.
  • Around 1 in 5 Hodgkin lymphoma cases occur in children, teenagers and young adults (up to age 24).
  • Since the late-1970s, Hodgkin lymphoma incidence rates have remained stable.
  • Most Hodgkin lymphoma cases are diagnosed at an early stage.
  • Over the last decade, Hodgkin lymphoma incidence rates have increased by around a fifth (19%) in the UK.
  • Worldwide there were estimated to be around 68,000 new cases of Hodgkin lymphoma in 2008, and more than half of these were in developing countries.
  • 1 in 370 men and 1 in 490 women will be diagnosed with Hodgkin lymphoma during their lifetime.

Read more in-depth Hodgkin lymphoma incidence statistics

  • More than a third of Hodgkin lymphoma deaths occur in people aged 75 and over.
  • In the UK there were more than 330 deaths from Hodgkin lymphoma in 2012, that is more than 6 people every week.
  • Hodgkin lymphoma death rates in the UK have fallen by 75% over the last forty years.
  • Worldwide, around 25,500 people were estimated to have died from Hodgkin lymphoma in 2012, with mortality rates varying across the world.
  • In Europe, around 4,600 people were estimated to have died from Hodgkin lymphoma in 2012. The UK mortality rate is 19th lowest in Europe for males and 13th highest for females.

Read more in-depth Hodgkin lymphoma mortality statistics

  • 8 in 10 (80%) people diagnosed with Hodgkin lymphoma in England and Wales survive their disease for ten years or more (2010-11).
  • Almost 9 in 10 (85%) people diagnosed with Hodgkin lymphoma in England and Wales survive their disease for five years or more (2010-11).
  • Around 9 in 10 (91%) people diagnosed with Hodgkin lymphoma in England and Wales survive their disease for one year or more (2010-11).
  • Hodgkin lymphoma survival is higher in women than men.
  • Hodgkin lymphoma survival is highest for people diagnosed aged under 40 years old.
  • 95% of people diagnosed aged 15-39 survive their disease for five years or more, compared with less than a third of people diagnosed aged 80 and over.
  • Hodgkin lymphoma survival is improving and has increased in the last 40 years in the UK.
  • In the 1970s, almost half of people diagnosed with Hodgkin lymphoma survived their disease beyond ten years, now it's 8 in 10.

Read more in-depth Hodgkin lymphoma survival statistics

  • 45% of Hodgkin lymphoma cases each year in the UK are linked to major lifestyle and other risk factors.
  • A person’s risk of developing Hodgkin lymphoma depends on many factors, including age, genetics, and exposure to risk factors (including some potentially avoidable lifestyle factors).
  • Evidence on Hodgkin lymphoma risk factors is limited, mainly because this cancer is relatively rare and comprises many subtypes.
  • Epstein-Barr virus is the main potentially avoidable risk factor for Hodgkin lymphoma, linked to an estimated 45% of Hodgkin lymphoma cases in the UK.
  • Human immunodeficiency virus (HIV) causes Hodgkin lymphoma.
  • Problems with the immune system, overweight and obesity, and smoking may relate to higher Hodgkin lymphoma risk.

Read more in-depth Hodgkin lymphoma risk factors

  • GP referral (not ‘two-week wait’) is the most common route to diagnosis of Hodgkin lymphoma.
  • ‘Two-week wait’ and ’31-day wait’ standards are met by all countries, and ‘62-day wait’ is not met by any country for haematological cancers.
  • Around 9 in 10 patients had a ‘very good’ or ‘excellent’ patient experience.
  • 9 in 10 of patients are given the name of their Clinical Nurse Specialist.

Read more in-depth Hodgkin lymphoma diagnosis and treatment statistics

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The latest statistics available for Hodgkin lymphoma in the UK are; incidence 2012, mortality 2012 and survival 2010-2011.

The ICD code Open a glossary item for Hodgkin lymphoma is ICD-10 C81.

European Age-Standardised Rates were calculated using the 1976 European Standard Population (ESP) unless otherwise stated as calculated with ESP2013. ASRs calculated with ESP2013 are not comparable with ASRs calculated with ESP1976.

Lifetime risk estimates were calculated using incidence, mortality, population and all-cause mortality data for 2010-2012 due to the small number of cases.

Survival statistics give an overall picture of survival and (unless otherwise stated) include all adults (15-99) diagnosed, at all ages, stages Open a glossary item and co-morbidities . The survival time experienced by an individual patient may be much higher or lower, depending on specific patient and tumour characteristics.

Overall, the evidence on Hodgkin lymphoma risk factors is limited, mainly because of this cancer's relative rarity and diversity. Studies which group together different morphological subtypes of Hodgkin lymphoma may be confounded if those subtypes have differing aetiologies.

Meta-analyses Open a glossary item and systematic reviews Open a glossary item are cited where available, as they provide the best overview of all available research and most take study quality into account. Individual case-control and cohort Open a glossary item studies are reported where such aggregated data are lacking.

Routes to diagnosis statistics were calculated from cases of cancer registered in England which were diagnosed in 2006-2010.

Cancer waiting times statistics are for patients who entered the health care system within financial year 2014-15. Hodgkin lymphoma is part of the group 'Haematological cancers' for cancer waiting times data. Codes vary per country but broadly include: Hodgkin lymphoma, follicular and non-follicular lymphoma, mature T/NK-cell lymphoma, other and unspecified types of NHL, other and unspecified types of T/NK-cell lymphoma, malignant immunoproliferative diseases, myeloma, lymphoid, myeloid and monocytic leukaemia, some other leukaemia of specific or unspecified cell type, and other and unspecified malignant neoplasms of lymphoid, haematopoietic and related tissue.

Patient Experience data is for adult patients in England with a primary diagnosis of cancer, who were in active treatment between September and November 2013 and who completed a survey in 2014.

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Acknowledgements

We would like to acknowledge the essential work of the cancer registries in the United Kingdom and Ireland Association of Cancer Registries, without which there would be no data.

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