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Resources and organisations

Find out about organisations, support groups, books, videos and other resources to help you cope with pancreatic cancer and treatment.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

Specific pancreatic cancer organisations and sites

Pancreatic Cancer UK is committed to fighting pancreatic cancer through research, awareness, information and support and other projects of benefit to pancreatic cancer patients. It provides a resource of information about pancreatic cancer to patients, caregivers and GPs. Their website also has a discussion forum for people with pancreatic cancer and their families.

Phone: 020 3535 7099 for support and information
Email: support@pancreaticcancer.org.uk 

The Pancreatic Society was formed in 1975 by members of the medical profession with a specific interest in the treatment of pancreatic disease. It has since expanded its membership to include nurses, dieticians and research scientists. The main aim of the Society is to promote and encourage the study of and research into diseases of the pancreas.

Phone: 0303 040 1770

The aim of Pancreatic Cancer Action is to help improve survival rates by way of increased awareness of pancreatic cancer within the population, the medical community and the Government. They also fund research specifically to help improve early diagnosis.

Phone: 0345 123 2399 (Monday to Friday, 9am to 7pm)
Email: info@diabetes.org.uk

Diabetes UK have a wealth of information on diabetes, symptoms and how to cope with it.

General support organisations and sites

Macmillan Helpline: 0808 808 0000 (Mon to Fri, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run a helpline providing cancer information and benefits advice.

The American National Cancer Institute (NCI) has detailed patient information on pancreatic cancer.

Booklets and factsheets from other organisations

  • Diet and cancer
  • Coping with advanced cancer
  • Controlling cancer pain
  • Lost for words - how to talk to someone with cancer
  • Sexuality and cancer
  • Understanding cancer of the pancreas
  • Understanding chemotherapy
  • Cancer research trials
  • Understanding radiotherapy
  • Talking to children about cancer
  • Talking about your cancer

Some of these booklets are also available on CD.

  • Chemotherapy
  • Radiotherapy
  • Clinical trials
  • MRI scan
  • Eating well when you have cancer
  • After treatment

Examples of booklets and factsheets by Pancreatic Cancer UK

  • Diet and pancreatic cancer
  • Caring for someone with pancreatic cancer: information for families and carers
  • Pain and pancreatic cancer
  • Surgery for operable pancreatic cancer
  • Surgery and other procedures to control symptoms

Books about cancer and treatment

Everyone's Guide to Cancer Therapy (revised 5th edition)
Malin Dollinger, Ernest H Rosenbaum and Andrew H Ko
Publishers: Andrews McMeel Publishing, 2008
ISBN-13: 978-0740768576

Covers how cancer is diagnosed, treated and managed day to day.

Coping with Chemotherapy
Dr Terry Priestman
Sheldon Press, 2009
ISBN-13: 978-1847090805

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life. This includes tiredness, sex life, and fertility, social life, work, holidays, exercise and diet.

Coping with Radiotherapy
Dr Terry Priestman
Sheldon Press, 2007
ISBN-13: 978-0859699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life. This includes social life, work, travel, exercise and diet.

100 Questions and Answers about Cancer Symptoms and Cancer Treatment Side Effects (2nd edition)
Joanne Frankel Kelvin and Leslie B Tyson
Publishers: Jones and Bartlett Publishing, 2010
ISBN: 978-0763777609

An American book that gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness and other symptoms.

Information about eating well

How to eat well when you have cancer
Jane Freeman Sheldon Press, 2012
ISBN: 978-1- 84709-141- 3

Written by a cancer dietitian, this is a practical nutritional handbook for people with cancer. Filled with helpful tips and recipes.

Complete Guide to Nutrition for Cancer Patients: Eating Well, Staying Well During and After Cancer (2nd edition)
Abby Bloch, Barbara Grant, Kathryn Hamilton and Cynthia Thomson
Publisher: American Cancer Society, 2009
ISBN: 978-0944235782

An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.

Videos of people's stories

Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.

Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more. 

Find local cancer information and support

NHS Choices helps you to find local cancer information and support.

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.