Type of activity: Patient & Public Community
Organised by: Cancer Research UK
Location: Mostly online. There will be some optional opportunities to take part in face-to-face activities.
Time commitment: Flexible, you can be involved in as much or as little as you like.
Payment and Expenses: Payments are offered in line with our payment policy. Payments are offered depending on the time spent. For example, if you spend up to 2 hours completing consultations in one month you can claim £30 plus a £5 virtual allowance.
Eligibility: The Cancer Data Patient & Public Community is open to anyone, based in the UK, whether or not you have a personal experience of cancer or not.
Closing date: This is an ongoing opportunity meaning you can join this community all year round
Building and maintaining trust through patient and public involvement and engagement is a vital part of our Research Data Strategy. We have launched a new Cancer Data Patient & Public Community to bring people together who have an interest in sharing their views around data to support our work.
Find out more about our work in this area(PDF, 2.58 MB)
The Cancer Data Patient & Public Community works together with Cancer Research UK and other organisations to improve the use of data in cancer research, aiming for improvements in detection, personalised care and treatments. By bringing together those affected by cancer and the wider public, the Community uses lived experiences to shape research and promote transparent and ethical data practices. Through public consultations and co-designing research, we work towards a future where data-driven discoveries lead to better outcomes for all affected by cancer.
You can be involved in as much or as little as you like. Some opportunities will need more time commitment than others. We’ll tell you how much time each involvement activity takes and how much payment is offered, so you can decide if it’s right for you. Some activities will take place online and some will be face-to-face. Here are some examples of the kind of activities you could take part in:
Surveys
Advising researchers on their research projects
Reviewing research funding applications
Workshops, focus groups, and interviews
Steering Groups or ongoing panels
Speaking at events
Reviewing new resources aimed at improving the understanding of data
Educational training and attending events to enhance your knowledge and confidence around data
If you have questions about the Cancer Data Patient & Public Community, or feedback for us, you can contact us by emailing or calling us at:
We value diversity, and we're committed to creating an inclusive space where everyone can be themselves and help shape our work. We actively encourage applications from people of all backgrounds, communities and cultures.
