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Resources and organisations

Organisations, support groups, books, videos and more to help you cope with womb cancer.

Cancer Research UK

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website. 

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

We also have news, health awareness leaflets and other resources on cancer. 

Support organisations for cancer

This is a detailed American site with information for both people with cancer and health professionals.

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

Specific women's cancer organisations and sites

Set up in 2011, Womb Cancer Support UK aims to provide support and information to women diagnosed with womb cancer, and to raise awareness of the disease. They also have a Facebook page.

The Eve Appeal is a UK national charity raising awareness, and funding research into the five gynaecological cancers - womb, ovarian, cervical, vulval and vaginal. They also provide a gynae cancer information and support service called Ask Eve.

Ask Eve telephone: 0808 802 0019

Ask Eve email: nurse@eveappeal.org.uk

General enquiries: telephone: 020 7605 0100 and email: office@eveappeal.org.uk

Go Girls offer support to women with gynaecological cancers. They are also raising awareness and campaigning for better diagnosis and treatments.

44 The Ridgeway, Upwey, Dorset DT3 5QQ

Tel: 01305 255719

Email: hello@gogirlssupport.org

General support organisations

Phone: 01372 744338
Email: info@prda.org.uk 
Contact form: http://www.prda.org.uk/get-in-touch/ 

A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition.

Gives information about the support and counselling that is available for people having difficulty with sex or relationships.

Phone: 020 8543 2707

Email: info@corst.org.uk

This site is about the hysterectomy operation, rather than womb cancer. There is useful information, including a booklet you can download. The website has message boards where you can exchange information with other women about having a hysterectomy and recovering from it.

Phone: 01452 790178
Email: info@thebls.com

A charitable organisation. Members include health care professionals from various specialities and people who have an interest in ensuring that people with lymphoedema have access to the care and treatment that they need. Has a directory of lymphoedema specialist practitioners.

Telephone 020 7351 4480
Email: admin@lsn.org.uk

This is a national charity offering information and support to anyone affected by lymphoedema. They have over 3500 members, 66 local support groups, run a helpline and have a website. They also produce a range of information including 25 factsheets about lymphoedema and its treatment, 2 DVDs about self management techniques for lymphoedema and a quarterly newsletter.

This charity aims to provide information and support to people with Lynch syndrome and their families, and to raise awareness of this syndrome. They also provide support through their Facebook page Lynch Syndrome UK Online.

Advice and leaflets on impotence and its treatment.

Books from libraries, bookshops or online booksellers

S Smith, US Department of Health and Human Service, National Institutes of Health and National Cancer Institute
CreateSpace Independent Publishing Platform, 2012
ISBN 978-1470043353

A comprehensive book about all aspects of womb cancer written for patients and for family and friends. This is an American book and therefore aspects of treatment and care may differ from the UK.

M Heffernan and M Quinn
Michelle Anderson Publishing, 2003
ISBN: 0855723327

An American book that deals with all aspects of gynaecological cancer. Gives concise information alongside women's own stories about their experiences.

S Haslett and others
Beaconsfield Pubs Ltd, 2012
ISBN 978-0906584620

A practical guide with information about the different types of hysterectomy operation. Tells you how to prepare for your operation and what to expect when you are recovering.

Suzie Hayman
Sheldon Press, 2002
ISBN 085969870X

A straightforward book dealing with the physical and emotional results of hysterectomy. It covers the operation and how to recover from it. Written without medical jargon.

Tara Parker Pope
Rodale, 2007
ISBN 978-1905744107

An American book aimed at helping to clear up some of the confusion around HRT.

Dr Ian Banks
J H Haynes & Co Ltd, 2009
ISBN 978-1844258505

A practical guide to all aspects of women's health, written for men to help them understand and support the women in their lives.

Booklets and factsheets from other organisations

Hysterectomy: the basics

Many of these are also available on audio CD.

Coping with advanced cancer 
Coping with hair loss 
Controlling cancer pain
Controlling the symptoms of cancer 
Diet and cancer 
Lost for words – how to talk to someone with cancer
Pelvic radiotherapy in women: possible late effects 
Sexuality and cancer 
Talking about your cancer 
Talking to children when an adult has cancer 
Understanding womb (endometrial) cancer 
Understanding cancer research trials (clinical trials)
Understanding chemotherapy
Understanding radiotherapy 

Chemotherapy
Clinical trials
Radiotherapy
Your operation and anaesthetic

If you would like to recommend a book

Please contact us if you would like to recommend a book that you have found helpful. It helps us if you include the title, author, publisher's name and year, and ISBN number.

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.