Organisations, support groups, books, videos and more to help you cope with womb cancer.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
We also have news, health awareness leaflets and other resources on cancer.
Support organisations for cancer
This is a detailed American site with information for both people with cancer and health professionals.
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Specific women's cancer organisations and sites
Set up in 2011, Womb Cancer Support UK aims to provide support and information to women diagnosed with womb cancer, and to raise awareness of the disease. They also have a Facebook page.
The Eve Appeal is a UK national charity raising awareness, and funding research into the five gynaecological cancers - womb, ovarian, cervical, vulval and vaginal. They also provide a gynae cancer information and support service called Ask Eve.
Ask Eve telephone: 0808 802 0019
Ask Eve email: firstname.lastname@example.org
General enquiries: telephone: 020 7605 0100 and email: email@example.com
General support organisations
A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition.
This site is about the hysterectomy operation, rather than womb cancer. There is useful information, including a booklet you can download. The website has message boards where you can exchange information with other women about having a hysterectomy and recovering from it.
Phone: 01452 790178
A charitable organisation. Members include health care professionals from various specialities and people who have an interest in ensuring that people with lymphoedema have access to the care and treatment that they need. Has a directory of lymphoedema specialist practitioners.
Telephone 020 7351 4480
This is a national charity offering information and support to anyone affected by lymphoedema. They have over 3500 members, 66 local support groups, run a helpline and have a website. They also produce a range of information including 25 factsheets about lymphoedema and its treatment, 2 DVDs about self management techniques for lymphoedema and a quarterly newsletter.
This charity aims to provide information and support to people with Lynch syndrome and their families, and to raise awareness of this syndrome. They also provide support through their Facebook page Lynch Syndrome UK Online.
Advice and leaflets on impotence and its treatment.
Books from libraries, bookshops or online booksellers
S Smith, US Department of Health and Human Service, National Institutes of Health and National Cancer Institute
CreateSpace Independent Publishing Platform, 2012
A comprehensive book about all aspects of womb cancer written for patients and for family and friends. This is an American book and therefore aspects of treatment and care may differ from the UK.
M Heffernan and M Quinn
Michelle Anderson Publishing, 2003
An American book that deals with all aspects of gynaecological cancer. Gives concise information alongside women's own stories about their experiences.
S Haslett and others
Beaconsfield Pubs Ltd, 2012
A practical guide with information about the different types of hysterectomy operation. Tells you how to prepare for your operation and what to expect when you are recovering.
Sheldon Press, 2002
A straightforward book dealing with the physical and emotional results of hysterectomy. It covers the operation and how to recover from it. Written without medical jargon.
Tara Parker Pope
An American book aimed at helping to clear up some of the confusion around HRT.
Dr Ian Banks
J H Haynes & Co Ltd, 2009
A practical guide to all aspects of women's health, written for men to help them understand and support the women in their lives.
Booklets and factsheets from other organisations
Hysterectomy: the basics
Many of these are also available on audio CD.
Coping with advanced cancer
Coping with hair loss
Controlling cancer pain
Controlling the symptoms of cancer
Diet and cancer
Lost for words – how to talk to someone with cancer
Pelvic radiotherapy in women: possible late effects
Sexuality and cancer
Talking about your cancer
Talking to children when an adult has cancer
Understanding womb (endometrial) cancer
Understanding cancer research trials (clinical trials)
Your operation and anaesthetic
If you would like to recommend a book
Please contact us if you would like to recommend a book that you have found helpful. It helps us if you include the title, author, publisher's name and year, and ISBN number.