Insulinomas are rare neuroendocrine tumours (NETs) that start in the insulin making cells of the pancreas. They are a type of functioning NET of the pancreas.

What are insulinomas?

Insulinomas are rare NETs that start in the insulin making cells of the pancreas. They make the hormone insulin which controls the amount of sugar (glucose) in your body.

Symptoms of insulinoma

The symptoms of insulinoma can be vague and are usually caused by changes in your blood sugar levels.

Risks and causes of pancreatic NETs

There are some factors that increase your risk of developing a pancreatic NET. This includes some medical conditions.

Diagnosing an insulinoma

You have some tests to diagnose an insulinoma. This might include a fasting test.

Stages and grades of pancreatic NETs

The stage and grade of a pancreatic NET helps your doctor decide which treatment you need.

Treatment for insulinoma

The treatment you have depends on a number of things such as where the insulinoma is, its size and whether it has spread.

Research and clinical trials for pancreatic NETs

Researchers are looking at improving the diagnosis, treatment and quality of life of people with pancreatic NETs.

Follow up for insulinoma

You have follow up appointments to check how you are and see if you have any problems or worries.

Living with NETs

Get practical and emotional support to help you cope with a neuroendocrine tumour.

Survival for insulinoma

Survival for insulinomas depends on many factors. So no one can tell you exactly how long you will live.

Last reviewed: 
30 Jun 2021
Next review due: 
30 Jun 2024
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