Follow up for mouth and oropharyngeal cancer

Why you might have follow up appointments

You usually have follow up appointments to check how you are. And to see whether you have any problems or worries. The appointments also give you the chance to raise any concerns you have about your progress.

How often are my check ups?

How often you see your specialist depends on:

• how you are feeling

• the type of treatment you have had. Below is a general guide. Your check ups might be more or less often. 

• In the first 2 years your check ups are usually every 2 months

• In the third to fifth year your check ups are usually every 3 to 6 months

• After the fifth year you may have yearly checks

What happens during the appointments?

Your doctor or nurse examines you at each appointment. They ask how you are feeling, whether you have had any symptoms or side effects, and if you are worried about anything. You might also have tests at some visits.

Tests might include:

• blood tests 

• x-rays

• a test to look inside your upper air passages (nasoendoscopy)

• a CT scan

• an MRI scan

• an ultrasound scan

• a PET-CT scan

Thyroid levels 

Your doctor will regularly check your thyroid levels if you had external radiotherapy to your neck. About 10 to 40 out of 100 people (10 to 40%) have low thyroid hormone levels after radiotherapy. This can make you feel very tired a lot of the time. You can have thyroxine supplements to correct the low levels.

Seeing other healthcare professionals

Depending on your individual needs you may see a speech and language therapist or a dietician if you have:

• changes to your speech

• problems with eating or swallowing

This may be at the hospital, or you may see someone near your home at a local clinic or your GP surgery.

Seeing your dentist

It’s also very important to have regular dental check ups. Your specialist nurse can give you advice on how often you should have a dental check up.

Between appointments

Contact your doctor or specialist nurse if you have any concerns between appointments. You should also contact them if you notice any new symptoms. You don’t have to wait until your next visit.

Many people find their follow up appointments quite worrying. A hospital appointment can bring back any anxiety you had about your cancer.

It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling during or after cancer treatment.

Read about counselling and how to find a counsellor

You can also find people to share experiences with by using our online forum, CancerChat.

Find out more at CancerChat

Smoking

Your doctor will encourage you to give up smoking before you start treatment. It is still worth giving up smoking after mouth or oropharyngeal cancer as it reduces the risk of your cancer coming back. 

Get help to stop smoking