Find out about organisations, support groups, books, videos and other resources to help you cope with lung cancer and treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
We also have news, health awareness leaflets and other resources on cancer.
Lung cancer support organisations
The British Lung Foundation gives information on all types of lung conditions. It runs support groups across the country. It produces a newsletter and other publications, and raises funds for research into lung disease.
Tel: 03000 030 555 (Monday to Friday, 9am to 5pm)
The Roy Castle Lung Cancer Foundation is a UK charity dedicated to defeating lung cancer. It funds research into early diagnosis and provides support to patients and their families. It also helps people to stop smoking and provides anti smoking education materials for children and young people.
People affected by lung cancer can share experiences through the foundation's network of support groups and the online discussion forum: Talk and Share.
Lung Cancer Helpline: 0333 323 7200 (9am to 5pm, Monday to Friday)
ALK Positive Lung Cancer (UK) is a charity established by a group of patients and carers. They provide support and advocacy for people affected by ALK positive non small cell lung cancer. They have a Facebook group and organise a patient forum every few months where affected people can meet up face-to-face.
Telephone: 07975 623515
Public Health England (PHE) is the main resource for advice about radon in the UK. It gives information about radon through it's website. You can order a radon risk report. And you can buy a kit to measure radon gas levels in your home.
Telephone: 01235 822 622
General support organisations
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
The National Cancer Institute has patient information about lung cancer. It is an American website so some of the information is not relevant for a UK audience.
This site has patient information about lung cancer but some information isn't relevant for a UK audience.
The British Association for Counselling and Psychotherapy provides information about therapy and counselling. On its website you can look for qualified therapists in your area.
Telephone: 01455 883300 (open Monday to Friday, 9am to 5pm)
Offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a relate centre. They also have live chat on their website.
Telephone: 0300 003 0396
Relationships Scotland provides relationship counselling, family mediation, child contact centres and other family support services across all of mainland and island Scotland.
InfoLine: 0345 119 2020 (open Monday to Friday 9am to 5pm)
Stop smoking organisations
This service offers support to stop smoking through the use of its app (Quit Kit), email, SMS and face to face guidance. You can also search for details of local support services.
England 0300 123 1044 – lines are open Monday to Friday, 9am to 8pm, and Saturday and Sunday, 11am to 4pm
Northern Ireland 0800 85 85 85
Scotland 0800 84 84 84
Wales 0800 169 0169
Books about lung cancer
J H Schiller and A Cipau
Jones and Bartlett Publishers, 2012
This book gives information about treatment options, quality of life after treatment, and living with lung cancer. It is an American book so some issues covered are not relevant to a UK reader.
Lange Media, 2013
This book gives detailed information about lung cancer, treatments, and the feelings and emotions people may have. It contains stories from people who have had lung cancer.
It is an American book so some information is not relevant to UK readers.
Find out what smoking does to your body, and how you can give yourself the best chance of quitting.
Dr Terry Priestman
Sheldon Press, 2009
Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.
Dr Terry Priestman
Sheldon Press, 2007
Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.
Information about eating well
Sheldon Press, 2012
Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.
A Bloch and others
American Cancer Society, 2010
An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Find local cancer information and support
NHS Choices helps you to find local cancer information and support.