Find organisations, support groups, books, videos and other resources to help you cope with laryngeal cancer and treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.
Cancer Chat is our online forum where you can share experiences.
Laryngeal cancer support organisations
Promotes the welfare of people who've had a laryngectomy, and their families. Supports 80 local clubs and can arrange hospital visits before and after your operation. Produces a video and a range of booklets, including a handbook for people who've had a laryngectomy.
Tel: 020 7730 8585 (9am to 4pm, Monday to Friday)
Formed in 1985 to help provide support and understanding for people who have, or need, a laryngectomy. There is a magazine for members and a free book.
Tel: 01422 205 522
The UK professional body for speech therapists. They can advise on speech therapy services and give other information to people who've had a laryngectomy.
Tel: 020 7378 1200
This is an American organisation. They publish a newsletter online and have information about laryngectomy on their website.
Tel: 1 866 425 3678
General support organisations
Macmillan Cancer Support provides practical, medical and financial support, and campaigns for better cancer care. It provides booklets on cancer and treatments and runs a helpline providing cancer information and benefits advice.
Macmillan support line: 0808 808 0000 (7 days a week, 8am to 8pm; information available in other languages) or fill in the support line form.
Changing Faces provide support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They also provide a skin camouflage service for people in England and Scotland. Trained volunteers teach people how to apply specialist cover creams.
Phone: 0300 0120 275 (support and advice line)
Head office email: firstname.lastname@example.org
The contact details for the skin camouflage service are:
Phone: 0300 0120 276
Smokefree is a website dedicated to helping people stop smoking. The website is staffed by counsellors who can give you advice on how to stop smoking. They can also send you an information pack.
An American organisation with a support network for people with cancers of the head and neck. They have a survivour to survivour network and some useful information, including clinical trials and products that may be helpful if you've had a head and neck cancer.
Books about laryngeal cancer
Times Books, 1999
John Diamond's brilliant, realistic and funny account of his diagnosis and treatment for laryngeal cancer.
Churchill Livingstone, 2013
Practical advice and information, as well as reassurance about the problems caused by the loss of normal speech. It's written in a straightforward, humourous style and is illustrated with cartoons.
Free copies are available for patients and health professionals by emailing: email@example.com
J E Thomas and R L Keith
Thieme Medical Publishers, 2005
Information about cancer treatments and how to manage problems with speech and swallowing. It includes exercises for improving speech and swallowing, and tips on tube feeding.
US Department of Health and Human Services, National Institute of Health, National Cancer Institute, S Smith (Editor)
CreateSpace Independent Publishing Platform, 2012
ISBN 978 1475010138
Comprehensive information for people who have cancer of the larynx,and their friends and family. This is an American book so some aspects of treatment and care may differ from what's available in the UK.
Booklets and factsheets
From Macmillan Cancer Support:
- Understanding chemotherapy
- Understanding radiotherapy
- Coping with hair loss
- Understanding cancer of the voice box (larynx)
- Coping with fatigue
- Diet and cancer
- Recipes from Macmillan Cancer Support
- Talking about your cancer
- Lost for words – how to talk to someone with cancer
- Sexuality and cancer
- Coping with advanced cancer
- Controlling cancer pain
- Understanding cancer research trials (clinical trials)
- Talking to children when a adult has cancer
- Work and cancer
- Travel and cancer
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Find local cancer information and support
NHS Choices helps you to find local cancer information and support.