The most common symptom of lymphoedema is swelling. Some people also feel heaviness or aching. Symptoms can appear any time after cancer treatment.
What lymphoedema is
Lymph fluid is in all body tissues. It comes from the tiny blood vessels into the body tissues. Normally it drains back into the bloodstream through channels called lymph vessels. These are part of the lymphatic system.
Blocked, removed or damaged lymph drainage channels or lymph nodes cause a build up of lymph fluid. This is the swelling called lymphoedema.
First symptoms of lymphoedema
One of the first symptoms you might notice is swelling in part of the body. Your clothes, shoes or jewellery may become tighter.
There are other reasons why people develop swelling. But if you notice any swelling that doesn’t go away, contact your doctor.
Other symptoms can include heaviness, tightness or stiffness. You might feel this before they develop any swelling. The area may also ache.
Swelling may be soft and easy to push in with your fingers, leaving a dent (called pitting oedema). The swelling may also be non-pitting.
Lymphoedema in the head and neck
Lymphoedema in the head or neck can also cause symptoms inside your mouth and throat. This may include swelling of your tongue and other parts of your mouth.
Tell your doctor if you:
- have any swelling or a feeling of fullness or pressure
- find it difficult to swallow
- have changes in your voice
Lymphoedema in the genital area
Lymphoedema in the genital area can cause a feeling of heaviness. Men who have swelling in their scrotum or penis might have difficulty passing urine. Women might find that their genital area feels uncomfortable and tight.
What to do if you have symptoms
The Lymphoedema Support Network can tell you how to get lymphoedema care within the NHS.
The British Lymphology Society has a directory of lymphoedema services.
Severe lymphoedema symptoms
Without treatment, your symptoms might change over time. The swollen area could become more swollen, harder, and more painful.
You might also have:
- pins and needles or tingling
- a numb feeling
- reddening of your skin, which may become hard and stiff
- more difficulty moving the affected area
- pitting – indents in your skin
- a change in shape of your arm or leg
- skin infections and a change in the texture of your skin
- watery fluid (lymph fluid) leaking from your skin
It usually takes some time for lymphoedema to develop after cancer treatment. Symptoms can take many months or a few years to appear.
Some people have swelling immediately after surgery. This is not lymphoedema. It’s part of the healing process and should get better within a few weeks.
Swelling is not always due to lymphoedema. See your doctor if you have any swelling that doesn’t go away.
Support for you
Lymphoedema can also affect you emotionally. You can get help and support with this, so ask for help from your treatment team if you need it.