There are lots of organisations, support groups and books to help you understand pain control and get the treatment you need.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.
We are committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.
Nurse freephone helpline: 0808 800 4040, Monday to Friday, 9am to 5pm
Admin phone number: 020 7242 0200
Cancer Chat is our online forum where you can share experiences.
General support, information and work organisations
For general health advice and information.
NHS 111 gives information if you need fast medical help but its not a 999 emergency.
NHS Inform gives information about illnesses, treatments and NHS services for people in Scotland.
NHS Helpline: 0800 22 44 88 (Monday to Friday, 8.00am to 10.00pm and Saturday and Sunday, 9.00am to 5.00pm) - for details of pharmacies, GP practices and dentists in Scotland.
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 0000 (Monday to Friday, 9am to 8pm)
Contact email form
ASTRiiD stands for ‘Available Skills for Training, Refreshing, Improvement, Innovation and Development’.
ASTRiiD is a not for profit organisation connecting businesses with people who have long term health problems, including cancer, but who still have skills to offer employers. A person can register their skills and experiences along with how much time they might be able to give to a potential employer. This might be a number of days a week or even just a few hours a month.
A company registers and highlights the skills and experiences that they are looking for in order to complete some work. ASTRiiD then compares these two registrations to see if there is match. If there is a good match then ASTRiiD will introduce one side to the other.
Organisations that provide equipment
Offers mobility aids at low cost to help both elderly people and disabled adults and children. Has an extensive range of daily living aids and disability equipment.
Brook Mill Industrial Estate
Phone: 03330 160 000 (Monday - Friday 8.30am - 5.30pm)
Email - to place an order or for general product information : firstname.lastname@example.org
Specific pain organisations
Offers information and support to people with pain and those who care for them. They run a helpline staffed by volunteers and have an online forum called HealthUnlocked for members to share experiences. You can listen to podcasts which feature interviews with experts and people who are managing their pain. You can also subscribe to their magazine, Pain Matters.
Helpline: 0300 123 0789 (Monday, Thursday and Friday, 10am to 12pm and 2pm to 4pm)
Books and booklets on cancer
A Ko, E Rosenbaum and M Dollinger
Andrews McMeel Publishing, 2009
The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.
J F Kelvin and L B Tyson
Jones and Bartlett Publishing, 2010
An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.
SL Rose and RT Hara
Jones and Bartlett Publishers, 2009
An American book which gives information about caring for someone with cancer, including how to support them when they have symptoms or side effects.
A Bloch and others
American Cancer Society, 2010
An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.
Sheldon Press, 2012
Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.
M Williams and others
Guilford Press, 2007
An American book, but two of the authors are British researchers who are helping to promote mindfulness based cognitive therapy courses for people experiencing stress and depression in the UK. A CD of guided meditations is included with the book.
Dr P Mortimer and G Levine
Elliott & Thompson, 2017
Explains the causes and symptoms of lymphoedema. Describes treatments, including massage, exercise, and compression garments. It also has information about coping day-to-day with lymphoedema.
From Macmillan Cancer Support
- Managing breathlessness
- Relax and breathe CD
- Managing cancer pain
- Managing the symptoms of cancer
- Coping with hair loss
- Coping with fatigue
- Healthy eating and cancer
- How are you feeling? The emotional effects of cancer
- Understanding cancer research trials (clinical trials)
- Understanding lymphoedema
From The British Pain Society
- Managing Cancer Pain – information for patients
- Help the Aged – Pain in Older People: Reflections and Experiences from an older person's perspective
- Intrathecal drug delivery systems for treating pain and spasticity – information for patients
- Managing pain effectively using over the counter (OTC) medicines
- Participant information for pain management programmes
- Pain and problem drug use – information for patients
- Spinal Cord Stimulation for pain – information for patients
- Use of medicines outside of their UK marketing authorisation in pain management and palliative medicine – information for patients
- Opioids Aware: A resource for patients and healthcare professionals to support the prescribing of opioid medicines for pain
- Understanding and managing long term pain
From My Name Is Not Cancer
- My name is NOT cancer – a leaflet aiming to help people understand what it is like to have cancer and to try not to be defined by it
If you would like to recommend a book
You can recommend a book that you have found helpful by using our email address. It helps us if you include the title, author, publisher's name and year, and the ISBN number.