Your GP can arrange for you to see a specialist doctor if you have symptoms that could be due to cancer.
Seeing your GP
It can be hard for GPs to decide who may have cancer and who might have a more minor condition. For some symptoms, your doctor may ask you to wait to see if the symptoms get better or respond to treatment, such as antibiotics.
There are guidelines for GPs to help them decide who needs a referral for a possible cancer. However there aren't specific referral guidelines for cancer of unknown primary.
Your GP should arrange for you to see a specialist if you have any symptoms that could be due to cancer.
UK referral guidelines
There are guidelines for GPs to help them decide who needs a referral.
Some of the UK nations have targets around how quickly you’ll be seen. In England an urgent referral means that you should see a specialist within 2 weeks.
This 2 week time frame is not part of the waiting times for Scotland, Wales and Northern Ireland. But wherever you live, you are seen as quickly as possible. Ask your GP when you are likely to get an appointment.
Your GP looks at your symptoms and decides what specialist to refer you to. For example:
- you see a gastroenterologist or a gastrointestinal surgeon if you have bowel or stomach problems
- you see a chest or respiratory specialist if you have problems with your breathing
- you see a urologist if you have problems passing urine or have blood in your urine
- you might see a head and neck specialist if you have a lump in your neck
What to expect
- asks about your medical history and symptoms
- examines you
They also arrange any tests that you need. These will depend on your symptoms.
Referral to the CUP team
If tests show that you have a cancer that has spread (secondary cancer), but your doctors can’t find where it started (the primary tumour), it’s called a malignancy of unknown primary origin (MUO).
Your doctor may then refer you to a team of health professionals who specialise in cancer of unknown primary. The specialist CUP team usually includes:
- a doctor specialising in cancer and its treatment (an oncologist)
- a palliative care consultant (a doctor that specialises in controlling symptoms)
- a CUP specialist nurse (a clinical nurse specialist or CNS)
The CUP team will examine you and review your medical history and test results. They may arrange for more tests to search for the primary cancer.
You have a confirmed cancer of unknown primary (cCUP) if no primary cancer is found. The CUP specialist team will then work together to decide on the best way to manage your care.