Organisations, support groups and books to help you cope with a brain tumour and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Brain tumour support organisations
The Brain Tumour Charity is the world's largest dedicated brain tumour charity. It funds cutting-edge research, provides support and information services and raises awareness. It aims to reduce the harm brain tumours have on quality of life, and ultimately, to find a cure.
Support line: 0808 800 004
Brain Tumour Support is a charity that provides information and support for people with brain tumours, and their friends and families.
The charity is hosting an ongoing programme of online support sessions via Zoom. These include UK wide support groups including for carers or peer support sessions. Brain Tumour Support are also offering topic specific sessions covering issues ranging from finance and benefits, palliative care and creative sessions for wellbeing.
Support Service Line: 01454 422701
This association offers support and information to people affected by an acoustic neuroma.
Freephone: 0800 652 3143
This project aims to increase the awareness of brain tumour symptoms in children and young people.
This organisation offers information and support for people with disorders of the pituitary gland. This includes people with a brain tumour in this area of the brain.
Helpline: 0117 370 1320 (Monday to Friday 10am to 4pm)
This organisation provides support and counselling. They are based in Scotland and run a number of support groups which meet there and throughout the UK. There is a discussion group on their website. They have booklets and leaflets on brain tumours and living with a brain tumour.
Phone: 0131 466 3116
General support organisations
This organisation provides support and information for people with neurological conditions and their relatives. It also produces free booklets on these conditions, including brain and spinal tumours.
Phone: 0808 808 1000 (Monday to Thursday 9am to 2pm, Friday 9am to 1pm)
Headway offers advice and support to people affected by a brain injury.
Helpline: 0808 800 2244
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Along with a comic book line, Jumo Health produces other products such as podcasts, videos, and games. They are all designed to help children, their parents and carers learn more about their health condition.
Books about brain tumours
Hodder & Stoughton Ltd, 2005
Ivan Noble was a science journalist for the BBC. He wrote a weekly column for their website about his feelings and experiences throughout his illness.
T Shiminski-Maher, P Cullen and M Sansalone
Childhood Cancer Guides, 2001
This book has medical information about brain tumours. It is American, so all the information might not be applicable to the UK.
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.